New Diagnosis - Looking for Specialist

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New Diagnosis - Looking for Specialist

Postby newknees » Tue Mar 29, 2011 12:57 pm

Hi all,
I am new to this site. I am a 45 your old wife and mother of 3. Have led a very active life, hiking, biking weight lifting, running etc.
I have had chronic back, leg and knee pain for the past 8 years. Had a partial knee replacement 1 year ago, that was not successful. My surgeon would like to remove the partial and perform a total knee replacement. I have had two unsuccessful decompression back surgeries in the lumbar region. I have constant pain in my head, neck, and shoulder blades. The pain travels down my arm. Constant sharp pains, tingling and numbness in my hand. I am unsteady on my feet and fall often.
I recently had a cervical MRI. The MRI showed minor disc protrusions and degeneration. As a side bar it was noted that a syrinx was present in the t2- t5-6 region. Thinking this may be the answer to the unexplained pain I have had for so long. My ortho says I need to have it monitored for many years and not to worry. He doesn't seem to think I need to see a specialist. I have done my research and have made an appt. with a neurologist. Not sure where to turn to next. I live in So. Cal. Does anyone know of any specialists So Cal?newknees

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Re: New Diagnosis - Looking for Specialist

Postby razzle » Tue Mar 29, 2011 3:33 pm

here is a list but dont know how up to date it is . Dr. Won I know people use

* Dr. Ulrich Batzdorf
Neurosurgeon
Box 956901
Los Angeles 90095-6901
(ph) 310.825.5079


Dr. Boggan
Neurosurgeon
University of California, Davis Hospital
Ambulatory Care Center
4860 Y Street
Sacramento, Ca
(ph) 1-866-550-5026

Dr. Harvey Edmonds
6113 N. Fresno St.
Ste. 101
Fresno, Ca. 93710
(209) 431-8500


Dr. J. Patrick Johnson
Neurosurgeon
444 S. Vicente Boulevard #800
Los Angeles CA 90048
310-423-9900

Dr. Jorge A. Lazareff
Assistant Professor, Neurological Surgery
HEAD, Pediatric Neurosurgery
UCLA Medical Center
Box 957039
10833 Le Conte Avenue
Los Angeles, CA 90095
(310) 206-6677
(310) 794-2147 fax
e-mail: Lazareff@Surgery.Medsch.UCLA.edu



Dr. Haig Minassian
8135 So. Painter Ave. Ste. 300
Whittier, Ca. 90602
(ph) 562.698.0679


Dr. Louis R. Nelson
CNS Center
Neurosurgery
Medical Group
1524 McHenry Avenue,
Suite 515 Modesto
(ph) 209.527.1651
(fax) 209.527.0828


Dr. Joseph E. Welsh
525 South Drive, suite 207
Mountain View, CA 94040
(ph) 650.969.5227


Dr Daniel Won
Neurosurgeon
Kaiser Permanente
411 N. Lakeview Ave
Anaheim Calif 92807
Once you choose hope, anything's possible.

Roz( Razzle51 or Rosalyn
Iowa
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Re: New Diagnosis - Looking for Specialist

Postby wendi » Thu Mar 31, 2011 3:35 pm

Hello & Welcome:

We have some members that live in SoCal. I am orginally from CA, but now live in PA. I just turned 49 and have cm. I had tethered cord surgery to treat some of my symptoms and am doing better. I take meds to manage the remaing symptoms.

Roz gave you the names of some specialists. I know that some people in CA have Kaiser and they are tough. I don't know what insurance you have or what you think about travel, but if I were you and you are able, I would try and see Dr Oro in Colorado as he is one of the best that is near you. You need to find out if you have cm and if that is the cause of your sm. If it is, you could have a PFD, decompression surgery, to hopefully collapse your syrinx. If not, then it is caused by your surgeries, trauma, or could just be idiopathic (no known cause) then you can only treat the symptoms or as a last resort, get a shunt which fails more often then it works.

You want to research this as knowledge is power. The main site here gives you tons of good info. Also, www.conquerchiari.org is a good site. We are here to answer questions and for a shoulder to cry on or just to vent.

Take care,
Wendi in PA
ACM 7.5mm B4 TCS 2.4mm post op
TC ,TCS @ TCI on 1/3/08,
chronic sacrolitis
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Re: New Diagnosis - Looking for Specialist

Postby mad254 » Sat Apr 09, 2011 2:11 pm

You must see a Neurosurgeon for a second opinion. Not just a neurologist for a syrinx. I was told by a neurologist theres nothing that can be done with the syrinx and never gave me any other testing to see what may be causing it for the 5 years I went to him. My new NS told me the kind of symptoms you are having are the signs of where my syrinx is which is in the C spine. Really you need NS to be able to answer you questions and one that has speciality in CM and SM. Good luck Madeline
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