Anyone have a Tornwaldt cyst?

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Postby georgiagal » Tue Apr 01, 2008 4:46 pm

Never heard of it, Keesha. What is it?

GG
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Postby georgiagal » Tue Apr 01, 2008 6:07 pm

Thanks for the info, Keesha. Yet another surgery you're doing to have to have. I'm so sorry! and you know the motto here.........."Vent Away".

Here's some ((((((((((hugs)))))))))))) Hope they help.

GG
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Postby Janice » Wed Apr 02, 2008 11:00 am

Hi Keesha,

I have one and when I asked my doctor (PCP) about it she said, oh it's only something to worry about if you're a child. Now I'm absolutely PO'd :x that she obviously gave me incorrect information.

I have a lot of dizziness and headaches (always suffered from different types). When I mentioned the dizziness she just prescribed Meclizine which does help but what if this cyst is causing problems and needs to come out?

Take care and thanks for the information.
GOD Bless!
Janice

Thoracic: SM T3-T12 / Disc Buldge T7-T9 / Mild Scoliosis
Cervical: SM C2-C6 / DDD / Kyphosis
Hemangioma's: T9-T11 & L4

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Postby kiminfla » Wed Apr 02, 2008 11:19 am

Keesh, Sorry to read of yet another bump in the road for you. As you said, hopefully they can take care of both things at one time so you only have to go through it once...and don't worry about your face -- your beauty would shine no matter what you looked like!

Janice, Sorry to read that you have this too! That is one great thing about ASAP though...we learn so much here...I've received quite an education here and at least with this new knowledge you have, hopefully you can get better treatment too! Be blessed, Kim
CM - PFD 9/7/06
Life is mostly froth and bubble. Two things stand like stone: Kindness in another's trouble, Courage in your own. -- Adam Lindsay Gordon
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Postby the 4ks » Wed Apr 02, 2008 12:31 pm

Keesha, Keesha, Keesha, again another bump in the road!

I hoped you would get a break from all these troubles!

It seems like its a never ending cycle.

Just know we are thinking about you and you have our support!
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Postby Janice » Wed Apr 02, 2008 12:33 pm

Keesha,

I'm sorry you have this too and I pray you are able to get this resolved quickly and safely.

If it's not one thing, it's another. :x

Thanks Kim, I do plan to ask my new PCP about this during my physical next week.

Take care and thanks again for bringing this up. Knowledge is power.
GOD Bless!
Janice

Thoracic: SM T3-T12 / Disc Buldge T7-T9 / Mild Scoliosis
Cervical: SM C2-C6 / DDD / Kyphosis
Hemangioma's: T9-T11 & L4

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Postby Sandy » Wed Apr 02, 2008 10:04 pm

Oh Keesha!

I'm so sorry to hear about this. Another thing on your plate to deal with.

Do you have a schedule or timetable on getting this removed? Will you keep us posted?

I would imagine that chocolate would be very good for something like that. You deserve it. You always hold everybody up and you have so much going on in your own health dept. you amaze me.

sending you a gentle hug.

love,
sandy :D
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Postby Tricia C » Thu Apr 03, 2008 4:46 pm

Hi Keesha,

What difficult news for you to get. You have already been through

so much and all of this is so tiring.

You are in my prayers,
Tricia
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Postby Vagreeneys » Thu Apr 03, 2008 8:02 pm

Keesha,
So sorry that another complication has popped up in your medical condition.

My neighbor had one removed last year with the scope.

Hope everything turns out fine for you

Heide
SM Syrinx c-5 to t-3 DDD t-10 and t-11 L-4 and L-5
Rhuematoid Arthiritis
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Tavlor cyst
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cyst

Postby chiarimom » Fri Apr 04, 2008 10:40 pm

Kate's last MRI also showed this cyst. So far we haven't heard anything from TCI regarding it. I will bring it up next time we see them.
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