Ever use Reddit?They've started an EhlersDanlos page

Have a question about a symptom, procedure, medication, diagnosis, research, or coping? Ask questions and share what you know with others

Moderator: pmaxwell

Ever use Reddit?They've started an EhlersDanlos page

Postby NextNyc » Tue Nov 01, 2011 4:47 pm

The page : http://www.reddit.com/r/ehlersdanlos/
This has just started so there aren't ton of people.. Reddit is a site that seems to be getting more and more users as the quality of similar sites has gone down.

Here is a link as well, you can vote for the EDS subreddit to get a specific logo for their category, if you wish to support this community or give it a chance,setting up an account and voting for this issue would be helpful http://www.reddit.com/r/redditlogos/com ... ersdanlos/ : )

The site works very nicely for other issues that are difficult to discuss online, so I see potential.
For those who don't know, it is a message board site that allows subcategories using the format reddit.com/r/NameOfCategory
It allows users to post pictures,links,questions,etc. Based on the quality of the post, it gets voted up or down. It allows a discussion of the material,message,or question people have posted,and one can vote up or down for these responses.
You can also PM specific users. It seems to be a mix of different people on it, and allows for a large variety of different topics.

It allows for creative categories like AMA(ask me anything) or IAmA for user to describe what makes them special(profession,skill,experience,hobby,etc) and allow questions from the community.

Here is an AMA from and EDS patient: http://www.reddit.com/r/IAmA/comments/k ... ersdanlos/
Syrinx C4 C6 with tail to T1; ACM 3 mm herniation. Symptoms=excruciating pain in arms and worse pain in shoulders & neck pain, the neck at min feels pressure filled and aches.Any position besides a reclined in Lazy Boy makes it worse
NextNyc
 
Posts: 42
Joined: Sun May 16, 2010 2:07 pm

Return to All About Chiari, Syringomyelia, and Related Disorders

Who is online

Users browsing this forum: No registered users and 8 guests

cron