Help - burning back pain

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Help - burning back pain

Postby socialdkitty » Tue Dec 10, 2013 12:26 am

Hi guys, I haven't posted here for a long time. I was DX with a C6-C7 syrinx in the fall of 2005 after having a MRI due to persistent headaches and burning between my shoulder blades. Fast forward to spring 2005. I didn't know much about what you're supposed to do/supposed to stay away from with a syrinx and I did some very heavy work outs with a personal trainer. While doing the work out, I felt immense burning in my upper left back just beside my spine which radiated to my chest. Like someone was stabbing me with a hot knife. It was way worse than the typical syrinx burning pain between my shoulder blades.
Since that day, 5 years ago, I've suffered with this pain daily. It comes and goes and usually only lasts about 15 seconds, but happens several times a day. It's like I get stabbed with a hot knife 20+ times a day, which obviously is not very fun. If I sneeze or cough, the pain intensifies throughout my entire upper body (BURNING pain), but again lasts only about 15 seconds.
My primary care doctor thinks it's asthma related and I have to admit the inhaler does help some, but I went to an asthma specialists and he's convinced it's NOT asthma and my pulmonary function tests are fine. Also I do have GERD, but I take 2 pills/day for that and this is not what it feels like.
Physical/massage therapy does help, but the minute I stop going, the pain returns just as bad as it was before.
Anyone have insight on this, similar symptoms, advice, etc? I'm so tired of dealing with this pain daily and I'm so worried about what's causing it, but I've been to mutiple doctors, specialists, chiropractors, etc and no one seems to care.
socialdkitty
 
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Re: Help - burning back pain

Postby socialdkitty » Tue Dec 10, 2013 12:27 am

Sorry, 8 years ago = not 5.
socialdkitty
 
Posts: 83
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Re: Help - burning back pain

Postby socialdkitty » Tue Dec 10, 2013 12:33 am

Also, nothing specific seems to make the burning attack happen. It is just totally random.
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Re: Help - burning back pain

Postby pfb1977 » Thu Feb 13, 2014 10:35 am

I have gerd and it does not cause pain like that. This may sound weird but are you having digestive issues as we'll? I had my gall bladder removed and the attacks would come and go. The most horrible pain from under neath my right breast rib area around to my back. The pain could last for an our or a few minutes then just go. May have nothing to do with it but seems your getting no help
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Re: Help - burning back pain

Postby kristinanneb » Fri Feb 21, 2014 2:51 pm

Sounds like nerve pain to me. I get this kind of pain - sometimes it is sharp, sometimes it is burning, but it is often as you describe - for around 15 seconds and often many times thorughout the day.
Good luck.
Kristin
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Re: Help - burning back pain

Postby birdlover3 » Thu Mar 13, 2014 10:05 am

I agree that it sounds like nerve pain. Have you been to a neurosurgeon or pain specialist? My burning pain across my shoulders never goes away, but it can worsen with certain activities. The pain also worsens with sneezing, coughing, or straining too much. When my pain is extra bad, it feels like a hot butter knife being pressed into my skin. I do stretches to help ease the pain. There are medicines for nerve pain like gabapentin or Lyrica that can help some. Taking magnesium helps. I've seen commercials on TV about Cymbalta that is supposed to help muscle pain. I hope you find a good doctor that knows about a syrinx with or without Chiari.
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