Neurosurgeon in Dallas/Ft. Worth TX?? Syrinx Specialist???

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Neurosurgeon in Dallas/Ft. Worth TX?? Syrinx Specialist???

Postby catfish » Fri Jun 01, 2007 5:55 pm

Hi Everyone!
I'm new to this message board. I was just diagnosed with a syrinx (non-Chiari) last week and am still in shock and quite honestly don't know what to think.

I want to start with getting a second opinion, preferably from a neurosurgeon who specializes in syrinx treatment - is there such a thing???? I realize I'm making assumptions there, but since this is a rare condition, I would think there would be specialists out there somewhere. I would appreciate some feedback on if you've found a specialist (even if you are not in the Dallas area), just so I know I'm not searching for something that doesn't exist!!

If you are in Texas and know of a good neurosurgeon in the Dallas or Ft. Worth areas (or any other area of Texas), I would appreciate your recommendations. I like the doctor I'm seeing - he's extremely nice and he and his PA make me VERY comfortable, but I don't want to cut myself short and not get a second opinion. From everything I've read on the internet this week, this condition does not have a good prognosis if left unproperly treated.

Thanks in advance for any responses!
Take Care!
catfish
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Texas

Postby razzle51 » Sat Jun 02, 2007 4:49 am

Seeing how the ASAP office is in Texas you may want to call them for a Drs. Name . They can help you .

Office Contact:
Operations Administrator
903-236-7079
800-ASAP282 (Toll Free)
Info@ASAP.org
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

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DRS

Postby razzle51 » Sat Jun 02, 2007 9:15 am

There are a couple in Houstan that have been recommended by patients :
Texas Dr. David Baskin Methodist Hospital Neurological Institute
Houston, TX. (713) 441-3800 and
Dr. Robert Grossman
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

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Postby mac » Sat Jun 02, 2007 1:51 pm

Hey Catfish, welcome to the board. Sorry to hear about your diagnosis, but you are taking the absolutely correct first step. Your instincts are right, to find a SM specialist. I hope you can get some helpful info here. I know junqdawg sees someone down there in Texas, don't know if he's reading this or not....

once again, welcome

mac
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Postby Mayzoo » Sun Jun 03, 2007 10:57 am

I have "heard" good things about doc Donahue, David at 682-885-2500 at Cooks Children's Hospital in Ft. Worth. I have NOT seen him. He is board certified. He participated in the Children's Miricle Network.

I have had negative experiences with Doc Sklar, and Doc Weprin in Dallas---but I may be the exception there.

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Postby catfish » Tue Jun 05, 2007 5:56 pm

Thanks to everyone for your responses so far!

Just an update...I did contact ASAP and they do not have a list of specialists in Texas, so I'm relying on this message board to get some feedback and recommendations (or warnings!) based on your experiences.

I have heard Dr. Grossman's name twice now, but in both cases they had not seen him themselves...they had just heard his name. I would appreciate anyone who has seen Dr. Grossman in Houston TX to let me know how your experience was/is.

I would still, obviously, like to see if there is an SM specialist in the Dallas/Ft. Worth area (I'm going to followup on Dr. Donahue at Cooks Children's Hospital).

Thanks again!!
catfish
 

dr. in Texas

Postby Jenintexas » Tue Jun 05, 2007 9:06 pm

Now I was trying to type in this chat and for some reason it started a new page. I have some doctors listed on new conversation called dr. in texas. I have only personally met 2 on the list and will have surgery by the first one next week. Good luck to you. :lol:
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Postby junqdawg » Tue Jun 05, 2007 10:56 pm

Catfish... Hi and welcome.I have been using Dr. Haring Nauta in University of Texas Medical at Galveston. You can Google him, he has written a couple books on syringomyelia.. "syrinx" ........ He is a wonderful caring man. He is the professor of neurosurgery and a great surgeon... Whats more ,he cares about the patient . If you can't find anyone in Dallas... let me know, I check this board every few days.. Best wishes... Junqdawg... East Texas
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Postby catfish » Wed Jun 06, 2007 8:19 am

Thanks junqdawg! I will definitely keep Dr. Nauta on my list to check out!
catfish
 

dr

Postby razzle51 » Wed Jun 06, 2007 9:31 am

HEY Cat fish I sent you a PM .
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

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