SM dos and don'ts - where??

Have a question about a symptom, procedure, medication, diagnosis, research, or coping? Ask questions and share what you know with others

Moderator: pmaxwell

SM dos and don'ts - where??

Postby catfish » Tue Jun 05, 2007 11:42 am

Hi!
I noticed in a reply to a posting by member Prism that member Specialmomx2 mentioned there is a list of "SM dos and don'ts" out there somewhere, but there was no mention of WHERE! If anyone knows where I can find this list, I would be grateful!! I'm newly diagnosed and am searching for any and all information, including what I should or should not be doing to avoid making my SM worse!

Thanks and have a Great Day! :D
Catfish
catfish
 

Postby kdenni » Tue Jun 05, 2007 11:47 am

I second that! I am newly diagnosed also and my GP said there are no "SM dos and don'ts" He stated Dr.'s do not know what makes the condition worse or better! Interested to know if that is incorrect.
kdenni
 

Postby daynthelife » Tue Jun 05, 2007 12:44 pm

I've always heard if it feels good do it and if it doesn't don't! lol...so I too would like to know if somewhere out there is a list..
daynthelife
 
Posts: 177
Joined: Wed May 16, 2007 5:29 pm

Dos and donts

Postby razzle51 » Tue Jun 05, 2007 1:01 pm

I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

User avatar
razzle51
 
Posts: 3281
Joined: Wed May 16, 2007 2:25 pm

Postby the 4ks » Tue Jun 05, 2007 1:43 pm

There are alot of dos and don'ts with SM. Don't let your Dr. tell you otherwise. :(
the 4ks
 
Posts: 419
Joined: Thu May 17, 2007 10:09 am
Location: Kansas City, Missouri

Postby prism » Tue Jun 05, 2007 2:41 pm

Razzle, you are just full of great links with great info- that's the second one I've looked up today that you posted!! :D thank you! prism
(i've only just heard and read bits and pieces of things and am not always sure I'm understanding them correctly- ie-- things off of the TCI web videos for example)
prism
 

Postby daynthelife » Tue Jun 05, 2007 2:47 pm

That's a great link but it's for Chiari...is there one for SM?
daynthelife
 
Posts: 177
Joined: Wed May 16, 2007 5:29 pm

Postby catfish » Tue Jun 05, 2007 2:48 pm

Thanks razzle51!!! Sounds like this will be a helpful link for several members!!

I have to agree with the daynthelife question though - if anyone has just an SM specific link, that would be greatly appreciated!!
catfish
 

Postby cash71 » Tue Jun 05, 2007 3:21 pm

Don't know of any specific to sm but there are some chiari does and don'ts that are applicable too. www.wacma.com. Click on onsite info then symptom alleviation list and household tips for chiarians.

HTH,

Caroline
Be kind for everyone you meet is fighting a harder battle (Plato)

Syrinx C3-T9, CM zero, OTC, cranial settling, dysautonomia/POTS, and ?EDS

see my blog for more info: http://www.chiariandsyringomyeliaincanada.blogspot.com/
User avatar
cash71
 
Posts: 1362
Joined: Wed May 16, 2007 1:30 pm
Location: Vancouver Island

dos and donts

Postby razzle51 » Tue Jun 05, 2007 4:08 pm

Here is a page from ASAP website that tells about Syringomyelia and how to cope.

http://asap.org/resources/coping.html
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

User avatar
razzle51
 
Posts: 3281
Joined: Wed May 16, 2007 2:25 pm

Postby Ryzing » Tue Jun 05, 2007 5:13 pm

One thing that makes my symptoms flare like mad is straining my upper body muscles :shock:

Diane
Syringomyelia - C4-T12, Fibromyalgia, Scoliosis, DDD
"If you don't change your beliefs, your life will be like this forever. Is that good news?"
User avatar
Ryzing
 
Posts: 1316
Joined: Wed May 16, 2007 2:37 pm
Location: Berlin Heights, Ohio

Postby kdenni » Tue Jun 05, 2007 5:14 pm

Thanks to all of you! Some great advice out there. I know that walking on inclines, mowing the grass and vacumming cause me pain as well as abdominal crunches. I haven't found a riding vacuum cleaner though :lol:
kdenni
 

Postby catfish » Tue Jun 05, 2007 5:52 pm

The www.wacma.com. link previously posted doesn't seem to work for me. Is anyone else having problems getting to this one??
catfish
 

Postby WeeLassie » Tue Jun 05, 2007 6:16 pm

Here is the correct link for WACMA. 8)

http://www.pressenter.com/~wacma/
WeeLassie
 
Posts: 101
Joined: Wed May 16, 2007 1:58 pm

Postby daynthelife » Tue Jun 05, 2007 8:29 pm

WeeLassie...where the heck have you been? It's nice to see you. How are you?

Thank you Roz for the info...again it's here right under my nose on our very own site..sighhhh

much luv,

kathy
daynthelife
 
Posts: 177
Joined: Wed May 16, 2007 5:29 pm

Next

Return to All About Chiari, Syringomyelia, and Related Disorders

Who is online

Users browsing this forum: No registered users and 13 guests

cron