How do they define a small syrinx compared to a large syrinx

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Postby angie7 » Sun Jun 10, 2007 9:12 pm

Deleted, double post...
Mama to 4 y/o ID twin girls (2006)
CM 0, C5-T1 syrinx, Scoliosis, Hypotension; PFD 2004
Deg Disc C4/5,Cervical Kyphosis-repaired 07 w cadavar bone graph & plate w 4 screws
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Postby powerlineman » Sun Jun 10, 2007 9:54 pm

I'm checked yearly and I see my pain doc anywhere from 1-3 months at a time.
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Postby Mary Alice » Sun Jun 10, 2007 10:22 pm

What does your pain doc recommend for day to day pain management? I haven't talked to anyone yet since everything has gotten so much worse so quickly. Just curious....if you don't mind sharing!
Mary Alice :?:
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Postby powerlineman » Mon Jun 11, 2007 11:30 am

I take Norco 10/325 4x a day. Fixing to move up to Percocet at the end of the month if this doesnt help the pain anymore (which it isnt).
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mri

Postby razzle51 » Mon Jun 11, 2007 11:42 am

Yes it is usually every 3 yrs . unless something comes up . Yes I am on medication. Keppra , Tramadol , flexerill plus others . Everybody is different. :)
I choose not to place "DIS" in my ability.

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Postby Ryzing » Mon Jun 11, 2007 1:43 pm

My NL told me I should have MRI's every year. :shock: I'm not looking forward to this, considering that would include a cervical, a thoracic and a lumbar :x ...oh yeah, and a bottle of Ativan.

Ryzing
Syringomyelia - C4-T12, Fibromyalgia, Scoliosis, DDD
"If you don't change your beliefs, your life will be like this forever. Is that good news?"
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Postby SMLady » Mon Jun 11, 2007 1:58 pm

My syrinx is considered small, even though it goes the entire length of the thoracic reagion. It's only 5mm wide, and it isn't considered "not small" anymore when it reaches 6mm.

I was having MRI's every six months because of how fast it was growing in the beginning. But the last MRI showed no sign of it getting bigger, so I'm down to once a year. I see a pain management doctor once a month for medications to help with the pain and the body spasms.

It's fun to be us.........
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