Doctor in New York?

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Doctor in New York?

Postby Raindrops » Mon Jun 11, 2007 3:33 pm

Anyone seeing a doctor in New York? I'm looking for a new NL (or NS), the one I'm seeing is a nice guy but I don't think he has the knowledge of SM/CM that I need. He seems to be more facinated by my condition than he is knowledgable............ I'd like to see a doc that can give me answers instead of the same questions every visit. Especially since the headaches seem to be coming back...............

Thanks in Advance,
Raindrop
Raindrops
 

dr

Postby razzle51 » Mon Jun 11, 2007 3:35 pm

Chairman
Thomas H Milhorat, MD.

http://www.chiariinstitute.com
Thomas H. Milhorat, MD
Chairman of Neurosurgery
The Chiari Institute
Great Neck, New York

I dont go there , but you are sure close
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

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Re: dr

Postby Raindrops » Mon Jun 11, 2007 3:44 pm

razzle51 wrote:Chairman
Thomas H Milhorat, MD.

http://www.chiariinstitute.com
Thomas H. Milhorat, MD
Chairman of Neurosurgery
The Chiari Institute
Great Neck, New York

I dont go there , but you are sure close


Thanks Razzle, He's actually the doc I 1st saw after I was diagnosed a few years ago. Back then he was seeing patients out of his Brooklyn office, since then he only works out of the L.I office which is more than an hour away from me. Not to mention I read on the chiari site they do not except managed care insurance............ :( I was hoping someone knew of someone a little closer who excepted insurance.....
Raindrops
 

dr.

Postby razzle51 » Mon Jun 11, 2007 4:15 pm

have you been here and checked on there map.

http://www.chiariconnectioninternational.com/
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

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Postby specialmomx2 » Mon Jun 11, 2007 4:43 pm

If you have Chiari, You shoull probably go to TCI. They are definitely the best, and a lot of people travel much longer distances to get there.

However, if you really dont; want to go to TCI: This is my NS. He takes my insurance. He is not a recognised CM or SM expert, but I liked him ( I am pre-op). He read my MRIs himself, he saw stuff other people had missed and didn't give me any nonsense about SM being congenital.

I asked a few of my other NY doctors about him, and he seems to have a good reputation.

Dr. Raj Shrivastava
Attending, Dept of Neurosurgery
Roosvelt Hospital
1000 tenth Ave
NY New York 10019
tel (212) 636 3709
fax (212) 636 3704

I hope this helps.

-Paula
"idiopathic" SM T3-T5 taking 50% of available space. Ehlers-Danlos Syndrome, Cervical stenosis, DDD, metabolic issues including reactive hypoglycemia.

check out my blog: www.onesickmother.com
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Postby the 4ks » Mon Jun 11, 2007 4:52 pm

You are lucky you only live 1 hour away from TCI
We live in Missouri and we go to TCI.
TCI is one of the best. :)
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Postby cash71 » Mon Jun 11, 2007 5:25 pm

Yes, I was thinking the same thing. I am so jealous that you live so close to TCI. I am coming from the west coast of Canada in 2 weeks and paying for it all out of my own pocket. I just want real answers to my situation so I've found a way to make it happen.
Be kind for everyone you meet is fighting a harder battle (Plato)

Syrinx C3-T9, CM zero, OTC, cranial settling, dysautonomia/POTS, and ?EDS

see my blog for more info: http://www.chiariandsyringomyeliaincanada.blogspot.com/
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