What does a Chiari Headache feel like?

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What does a Chiari Headache feel like?

Postby socialdkitty » Mon Jun 11, 2007 9:44 pm

I've posted this question a few different ways, but I'm just going to ask it straightforward and maybe I'll get more help/insight then I have in the past. I would love to hear everyone's experience. I am still waiting on a specialist to tell me if I have it, my main symptom is the headache. Thanks all!
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Postby socialdkitty » Mon Jun 11, 2007 9:58 pm

Keesha.. Does yours get worse with sneezing/coughing/straining? Thats where my real problems come in - I can feel OK but I sneeze and I'm done for the day... My head from the base of my skull up to my left temple kills me for the rest of the day.
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Postby cash71 » Mon Jun 11, 2007 10:26 pm

I've had these HA for 13 years since a bad whiplash but didn't know what they were. now I'm fairly certain It's cm. I will know for sure in 2 weeks when I see Dr. B and get my CINE MRI.

Mine start at the base of my skull and the upper part of my neck. It feels so stiff and knotted. It then radiates to behind one eye or the other. Most of the time they were bearable and I just walked around with HA's most of the time. I described them as a headache in my neck. Sometimes they would get really bad. Much more painful with throbbing behind my eyes and sinuses and I sould get kinda nauseated. I described these as my "brain hemorrhage" HA's b/c that's what if felt like.
Mine do get worse with straining, coughing or sneezing becoming throbbing and more intense but I thought everyone with headaches felt like that. When I read the decriptions of chiari headaches and other's experience I kinda went.....OOOOHHH, that decribes my HA's to a tee.

HTH,

Caroline
Be kind for everyone you meet is fighting a harder battle (Plato)

Syrinx C3-T9, CM zero, OTC, cranial settling, dysautonomia/POTS, and ?EDS

see my blog for more info: http://www.chiariandsyringomyeliaincanada.blogspot.com/
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Postby socialdkitty » Mon Jun 11, 2007 10:30 pm

Caroline, thank you for your reponse.. You always have the best information. Do you think yours is like injury induced CM? That can happen, right? You pretty much described what I'm going through exactly. Please if you can remember keep me updated and let me know if you have CM or not. Dr. Ellenbogen in Seattle is reviewing my MRI and he is supposed to call me on Friday or sometime early next week and let me know what he thinks.. You have SM too, right?
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Postby cash71 » Mon Jun 11, 2007 10:41 pm

Hi Socialdkitty,

Yes all my "troubles" started when I was hit by someone that ran thru a stop sign and hit my car and totalled it. I sustained a bad whiplash and have had symptoms ever since. I do have a syrinx too from C3 to T9. Not sure when that appeared. I'll probably never know as I didn't get an MRI at the time.

Caroline
Be kind for everyone you meet is fighting a harder battle (Plato)

Syrinx C3-T9, CM zero, OTC, cranial settling, dysautonomia/POTS, and ?EDS

see my blog for more info: http://www.chiariandsyringomyeliaincanada.blogspot.com/
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Postby blue1 » Mon Jun 11, 2007 10:55 pm

socialdkitty
Hi There'
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Postby kathymichelle » Tue Jun 12, 2007 12:48 am

My chiari HA do worsen while straining coughing, and it hurts where the pressure moves to the front of my head.

Otherwise, CM HA's seems to begin at the back/base of my skull the bony area. Pressure and pain like squeezing. It can radiate.

I know that migraines are just like Keesha a party compared to chiari HA's. Seriously. I hate migraines, but don't hold a candle to a chiari HA.
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Postby Raindrops » Tue Jun 12, 2007 12:10 pm

Pressure and Pain, Pressure and Pain..........My headaches feel like my brain is going to EXPLODE...the back of my upper neck throbs and throbs and I have a constant shooting pain behind my eyes............... Bad coughing and sneezing gives me headache also if I wear my glasses too long and I can 4get about putting on a headband. Instant headachs!
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