An additional cyst diagnosed

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An additional cyst diagnosed

Postby dmwoodfield » Mon Jul 02, 2007 4:41 pm

I just had the result of my second set of MRIs that were completed after an inital syrinx diagnosis about a month ago.

My neuro says I have a neurocentric or esophageal duplication or foregut cyst 15 x 10 x 6mm level T3-T4.
He basically said I would have had it from birth and just to ignore this along with Syrinx as I have no major symptoms (just numbness in right arm/hand and minor back pain)
However I lost complete confidence in him when I asked if this new cyst was internal or external to the spine, he said it was internal during the consultation then as I was leaving said ran out to me and added it was external. Also during the appt I asked to see my MRI and he said he did not have it in the office - he just had the radiologist report.

After the appt I went to the imaging center where my MRI was taken and got a copy of the MRI and radiologist report.

Now I know I need to get a second opinion.
I tried to research these new cysts on the internet and there is not much info on them - they appear to be other rare conditions.
Has anyone heard of these???

Also I guess I am now trying to figure out which type of DR I need to see next.

Thanks
Donna
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Postby youngwife » Mon Jul 02, 2007 6:22 pm

:(
Donna,

I am sorry I don't have any helpful information for you, but I just wanted you to know I understand your fustrations and would also be looking for a new doc if it were me! :?
Homeschooling mom to 6 wonderful blessings from the Lord. ~ "Let no corrupt communication proceed out of your mouth, but that which is good to the use of edifying, that it may minister grace unto the hearers." - Ephesians 4:29
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Postby Cyborg Ninja » Tue Jul 03, 2007 11:42 pm

It doesn't sound like your doc is that bad. The radiologist's office could have screwed up and not sent over the MRIs. Sometimes you're the one who's supposed to get the films anyway. Plus, he ran out after you to tell you it was external. Sounds like it was just a verbal slip-up. He knew he said the wrong thing it ran out after you to tell you.
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Postby kmjofga » Wed Jul 04, 2007 2:30 am

I have experienced the same frustration as you with records and files. Please do not be too hard on your doc for the radiologist not sending the images.

I had to learn the hard way that I needed to be the one to keep copies of all my records. Almost nothing is more stressful than spending weeks or months waiting to see a new specialist and realizing that they do not have the right records/images. I keep a copy of everything. Legally it is my right to have it and my responsibility to keep it all.

Also great doctors sometimes can have a slack staff member(s) who are notorious for being disorganized. I went through a four month nightmare because I assumed the MS Center in Atlanta could do no wrong.

God Bless you
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stomach

Postby razzle51 » Wed Jul 04, 2007 8:11 am

Since this has to do with the stomach I would consult a gastrologist .
I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

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