Chiari AFTER SM ???

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Chiari AFTER SM ???

Postby Ryzing » Wed Jul 04, 2007 4:27 pm

Just wondering -

Can you be diagnosed with Chiari years after having an SM only diagnosis?

Diane
Syringomyelia - C4-T12, Fibromyalgia, Scoliosis, DDD
"If you don't change your beliefs, your life will be like this forever. Is that good news?"
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Postby Cyborg Ninja » Wed Jul 04, 2007 4:34 pm

I don't see why not. Sometimes doctors miss the Chiari, whether because it's a small herniation or they're inexperienced. And sometimes they don't even have an MRI done of the cervical spine until much later (also from inexperience).
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Postby SMLady » Wed Jul 04, 2007 4:56 pm

Hey Diane! Hope you are having a happy 4th of July.

I don't know for sure the answer to your question,but I think I read on here before where people were diagnosed with CM AFTER SM. I was diagnosed with SM in February 05, and they didn't even check me for CM until 4 months later. So I don't know. I really just wanted to say hi!
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me too

Postby sparks42 » Wed Jul 04, 2007 5:10 pm

Hi Ryzing, we have the same issues going on with our spine haha.
Scoliosis, Spinal fusion, Syringomyelia......but we've already discussed that ;)

I haven't been diagnosed with CM but I feel like I do have it. It would sure explain A LOT!!

But I haven't been checked for it yet.

So....in my opinion....of course they could find SM first....and then CM later.

Now, CM [i]developing[/i] later......that's a different story.....and a good question!!
- Syringomyelia, Scoliosis, Spinal Fusion, no CM
- 24 year old female
- London Ontario Canada
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Postby angie7 » Wed Jul 04, 2007 8:59 pm

Absolutely. Most doctors dont consider an ACM dx until the herniation has reached 5+mm. My case for instance. I was first dx with SM and then 2 months later with ACM. The doctor that dx the SM sent me to a NS in my town that said that I didnt have ACM and he didnt know why I had the SM. I sought out an ACM specialist who dx me with ACM 0. He did a cine mri which found minimal to no flow of csf to my brain and I was only herniated to 0mm. So yes, it can very well happen...
Mama to 4 y/o ID twin girls (2006)
CM 0, C5-T1 syrinx, Scoliosis, Hypotension; PFD 2004
Deg Disc C4/5,Cervical Kyphosis-repaired 07 w cadavar bone graph & plate w 4 screws
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Postby Ryzing » Thu Jul 05, 2007 7:50 am

Thanks for your input, ladies! I was thinking it was definitely possible, especially, like CN said, if you have a small herniation or a 0 mm herniation.

Diane
Syringomyelia - C4-T12, Fibromyalgia, Scoliosis, DDD
"If you don't change your beliefs, your life will be like this forever. Is that good news?"
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Postby gncrzy3 » Fri Jul 06, 2007 9:47 am

I was dx with basilar invagination 5 years after being dx with sm,,,
( now the way my neuro explained it to me,,, is a form of chiari,,,)
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Postby dizzy2 » Fri Jul 06, 2007 8:32 pm

I'm confused. How can you have CM with 0mm herniation? Isn't that what CM is? A herniation? If you have 0mm herniation, how do you have minimal spinal fluid flow? Wow! Now I'm really lost. I was hoping that since I have only a 7mm herniation that my CSF is o.k. Can you feel if the CSF is compressed? Do you get headaches or you would never know. I have not had a CINE MRI yet.

Lidia
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