New Symptom or Something

Have a question about a symptom, procedure, medication, diagnosis, research, or coping? Ask questions and share what you know with others

Moderator: pmaxwell

New Symptom or Something

Postby CrazyCat » Thu Jul 05, 2007 4:15 am

I have no clue what is going on now. Daily, 2-3 times a day I am having problems where I zone out. It's like I am present and I can still hear things going on but I cannot respond nor can I process the input such as what is that sound outside, people talking to me, a song on the radio, etc. My brain feels like it's trying to process a million things and it is just going to short circuit when this is going on. I also start smelling some type of ammonia/sulfur smell during or right after this happens. Of course there isn't anything around that even comes close to that smell so I don't know what is going on. I was actually typing a document when this happened one time and what was in my head is not what came out on the document. I went back to proofread the document and it made no sense at all. It's like I typed random words and mispelled most of them. I cannot take a lot of sensory input at all now. If the TV is on, ok but it can't be loud. I can have the radio on but no other noise or it sets off whatever this is going on. I can't lay on the couch on my right side or it sets this off almost every time. I can lay on my left side...how weird is that? I give up......
~Be who you are and say how you feel, because the people who matter don't mind and the people who mind don't matter.~
CrazyCat
 
Posts: 94
Joined: Fri May 18, 2007 5:50 am
Location: Raleigh, NC

Postby specialmomx2 » Thu Jul 05, 2007 7:40 am

I hate to say it, but it sounds like it could be seizure activity. You should mention it to your neurologist ASAP and arrange for an EEG.


Check out the site www.epilepsy.com or www.myepilepsy.com pay particular attention to partial seizures, complex partial seizures and seizure auras.

I'm sorry but I hope this helps.

-Paula
"idiopathic" SM T3-T5 taking 50% of available space. Ehlers-Danlos Syndrome, Cervical stenosis, DDD, metabolic issues including reactive hypoglycemia.

check out my blog: www.onesickmother.com
specialmomx2
 
Posts: 937
Joined: Fri May 18, 2007 7:47 am

Postby SMLady » Thu Jul 05, 2007 8:02 am

I agree with Paula. When I was reading your post, the first thing I thought was you might be having some type of seizures.

Take care...
User avatar
SMLady
 
Posts: 1571
Joined: Thu May 17, 2007 6:37 pm
Location: Midwest

Postby CrazyCat » Thu Jul 05, 2007 8:03 am

Sigh...I don't have a Neurologist. The last one did a LP stating ACM and pressure readings were not an issue and I am still dealing with the effects of that. My PCP says they don't know what to do with me so here I am. :(
~Be who you are and say how you feel, because the people who matter don't mind and the people who mind don't matter.~
CrazyCat
 
Posts: 94
Joined: Fri May 18, 2007 5:50 am
Location: Raleigh, NC

Postby specialmomx2 » Thu Jul 05, 2007 9:59 am

Can your PCP refer you to an epileptologist? An epileptologist is a nrurologost who specialises in epilepsy and seizures. An epileptologist shoudl be able to perform an EEG and help you further.

-Paula
"idiopathic" SM T3-T5 taking 50% of available space. Ehlers-Danlos Syndrome, Cervical stenosis, DDD, metabolic issues including reactive hypoglycemia.

check out my blog: www.onesickmother.com
specialmomx2
 
Posts: 937
Joined: Fri May 18, 2007 7:47 am

Postby Tidbit » Thu Jul 05, 2007 11:35 am

That definitely sounds like seizures to me, especially since you're smelling things that aren't there.
Idiopathic SM C4-T1 and T2-T11. Cervical laminectomy and duraplasty May 2005. Syringosubarachnoid shunt Sept 2006. From Ontario, Canada.
Tidbit
 
Posts: 78
Joined: Fri May 18, 2007 2:36 pm

Postby CrazyCat » Fri Jul 06, 2007 7:07 am

I was afraid of that. It's been going on for several weeks and comes more frequently now. Praying I hear from TCI soon. I haven't been sleeping well for a while. Not that I slept much before but the pain and headaches are 9 1/2 now daily all day so I am pretty exhausted. I think that has something to do with this coming on.

{{{HUGS}}}
~Be who you are and say how you feel, because the people who matter don't mind and the people who mind don't matter.~
CrazyCat
 
Posts: 94
Joined: Fri May 18, 2007 5:50 am
Location: Raleigh, NC

Postby specialmomx2 » Fri Jul 06, 2007 9:01 am

If TCI expect seizure activity, they will likely want you to have an EEG before they will do anything.

That was my experience: They saw me for the initial eval, but then they insisted on seeing an EEG report AND an echocardiogram (I have EDS) before they would go any farther with me.

...then they blamed most of my problems on Epilepsy (which diagnosis was since removed) and cut me loose.

-Paula
"idiopathic" SM T3-T5 taking 50% of available space. Ehlers-Danlos Syndrome, Cervical stenosis, DDD, metabolic issues including reactive hypoglycemia.

check out my blog: www.onesickmother.com
specialmomx2
 
Posts: 937
Joined: Fri May 18, 2007 7:47 am

Seizure activity

Postby gladys » Fri Jul 06, 2007 2:34 pm

I have had seizures of horrendous odors, and so does my younger son.
I had full fledge seizures until I was 6 yrs old. Then, I've had these type seizures for all my adult life. I have, also, written letters to a friend, who sent those letters back to me, to read. She sent them back, because, there were NO real words in the letters at all. I HAD proofread the letters, so this freaked me out! Don't let it disturb you too much. The odors, eventually, do go away. (they come back at a later time, for me). I've learned to just ask a friend or relative around me, if there is any smell that THEY can smell. It's so horrible to smell.........but, it WILL go away!
I hope this doesn't happen to you, often. Take care!
gladys
 


Return to All About Chiari, Syringomyelia, and Related Disorders

Who is online

Users browsing this forum: No registered users and 6 guests

cron