upper body rigidity

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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upper body rigidity

Postby alizesmom » Wed Oct 21, 2009 10:41 pm

We are hoping to adopt an infant. She is described as having "upper body rigidity due to a rare spinal issue". Does that sound like a CM with syrinx to you or should I be investigating something else?
Always looking for answers
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Re: upper body rigidity

Postby jupes » Fri Oct 23, 2009 8:13 am


There are a lot of spinal conditions that can cause those symptoms. The only way of knowing if it is CM/SM is to get a MRI. I would hope they would give you more detailed medical info on the child you are adopting!

Good luck!
14 yr old DD with CM 0/SM and mild scoliosis.
"Trust in the Lord with all your heart and lean not on your own understanding" Proverbs 3:5
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