scoliosis and syrinx/neurosurgeons in NYC area

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

Moderator: pmaxwell

scoliosis and syrinx/neurosurgeons in NYC area

Postby garnet10 » Tue Jan 05, 2010 4:57 pm

My 10 year old daughter has been diagnosed with scoliosis and recent MRI of her spine shows a small syrinx in her upper thoracic region as well as a small syrinx in her lumbar region.

We are seeing Dr. Neil Feldstein on Thursday for an opinion.

Does anyone else know of any other pediatric neurosurgeons who are very experienced in treating syringomyelia?

Thanks!
garnet10
 
Posts: 1
Joined: Tue Jan 05, 2010 4:49 pm

Re: scoliosis and syrinx/neurosurgeons in NYC area

Postby jupes » Wed Jan 27, 2010 10:14 am

Hello and welcome!

My daughter has scoliosis and a cervical/thoracic syrinx . What are your daughter's symptoms and have all causes been ruled out? In most cases there is a cause for the syrinx such as chiari, tethered cord,trauma ect. It is important to see an expert that treats a lot CM/SM patients. We had to seek a few opinions before getting an accurate diagnosis and finding out she has "borderline" chiari too. Not familiar with specialist in NYC other than the Chiari Institute. Is the current Doctor a CM/SM expert? If you post again "looking for experts in NYC" someone may be able to give you a list of experts in your area. Hope her appointment went well. Let us know!

Keep educating yourself too! Take care!
Julie
14 yr old DD with CM 0/SM and mild scoliosis.
"Trust in the Lord with all your heart and lean not on your own understanding" Proverbs 3:5
jupes
 
Posts: 262
Joined: Fri Jan 09, 2009 2:37 am

Re: scoliosis and syrinx/neurosurgeons in NYC area

Postby Janice » Wed Jan 27, 2010 1:53 pm

Hi Garnet and Welcome!

I agree with what Julie said.

Julie, welcome back!
GOD Bless!
Janice

Thoracic: SM T3-T12 / Disc Buldge T7-T9 / Mild Scoliosis
Cervical: SM C2-C6 / DDD / Kyphosis
Hemangioma's: T9-T11 & L4

http://janice-mylifewithsm.blogspot.com/ (Copy & Paste link into your browser)
Janice
 
Posts: 4412
Joined: Wed May 30, 2007 6:44 pm
Location: Escondido, California

Re: scoliosis and syrinx/neurosurgeons in NYC area

Postby brianfsmom » Fri Jan 29, 2010 6:52 am

Hello

Sorry you have to go through this! I know it is no fun. There are a few NYC docs I would recommend for opinions. Feldstein is of course one of them, and it sounds like you have probably met him by now.

Others are: Souweidane at NY Hospital, Wisoff at NYU and there are two doctors at Montefiore that I know of: Abbott and Goodrich (( think ))

Also I have heard very good things about Schneider out on Long Island, and recently I have heard of a Steineke in NJ.

Good luck! I hope you have gotten some answers already.
brianfsmom
 
Posts: 186
Joined: Thu Jul 26, 2007 2:31 pm


Return to Pediatrics

Who is online

Users browsing this forum: No registered users and 6 guests

cron