Have a child with SM/Chiari? Share issues unique to children and their caregivers.

Moderator: pmaxwell


Postby 3kidssane » Mon Feb 01, 2010 11:54 pm

Does anyone have expeirience with LeBonheur Childrens Hospital in Memphis
Mother of: DD,8 with Cm 1 protruding tonsils 10mm and SM with Syrinx from t5-t7, 4 mm in depth and 5 mm in width, DC'd 2x 6/2010, DS, 4 with enviromental allergies, food allergies and autism,DS 2, DS 5 months.
Posts: 36
Joined: Tue Dec 29, 2009 12:56 am

Re: Memphis

Postby jupes » Tue Feb 02, 2010 4:24 am

I see from your other post that you live in Kentucky! Not familiar with any experts in your state or in Memphis, maybe someone else will chime in with a closer recommendation. Many of us have to travel to other states for treatment. Is there any possibility of travel to Chicago for treatment? Dr Frim is one of the Top Peds experts and is highly recommended. Many of his patients are from Out of state. Maybe you could mail your DD's MRI films to him and see if he will see her or if he has any other suggestions! I would call and/or send him an email (email address is on University of Chicago hospital website).

Good Luck!

* Dr. David Frim
University of Chicago Children's Hospital
Pediatric Neurosurgery
5841 S. Maryland Avenue
Chicago, IL 60637
Office Phone: (773) 702-2475
Office Fax: (773) 702-5234
14 yr old DD with CM 0/SM and mild scoliosis.
"Trust in the Lord with all your heart and lean not on your own understanding" Proverbs 3:5
Posts: 262
Joined: Fri Jan 09, 2009 2:37 am

Re: Memphis

Postby youngwife » Wed Feb 03, 2010 12:02 am

We have had many experiences with LeBonheur...some great...some not so great. :|
Homeschooling mom to 6 wonderful blessings from the Lord. ~ "Let no corrupt communication proceed out of your mouth, but that which is good to the use of edifying, that it may minister grace unto the hearers." - Ephesians 4:29
User avatar
Posts: 1198
Joined: Wed Jun 27, 2007 9:36 pm
Location: At home with my children!

Re: Memphis

Postby razzle » Thu Feb 04, 2010 1:46 pm

dR.Fred Boop is a chiari specialist in Memphis
Once you choose hope, anything's possible.

Roz( Razzle51 or Rosalyn
User avatar
Posts: 1876
Joined: Thu Apr 30, 2009 4:55 am

Return to Pediatrics

Who is online

Users browsing this forum: No registered users and 7 guests