stomach pain

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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stomach pain

Postby Gracie Rose » Sat Aug 25, 2007 12:23 pm

Hi all,

Our 14 yr old, 12 yr old and 6 year old all have the nausea with ACM but two of them have tummy pain/cramps (???) . It is awful and they can't quite describe it. Do any of your children suffer with this , and how do they describe it??

Gracie Rose
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Postby pearland1 » Sat Aug 25, 2007 4:52 pm

My three year old little girl has constant tummy pain. She complains of it at least once per day. I can't help much with a description from her, as you can imagine how a three year old cna describe it! She just says it is at her belly button.
She also always has bowel problems (either constipated or very leaky), so I'm sure it all goes together.
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Postby crism » Sun Aug 26, 2007 6:53 am

Karli, my 6 year old, who has been decompressed, complains about stomach pain from time to time. Karli says it feels like she has the vomit and go to the bathroom at the same time.

Karli suffers from nausea very frequently.

She always points to her belly button. I began to wonder if it was her appendix, but if I rub her belly gently in a circular motion, it helps. She will then pass some gas.

I think she could be swallowing too much air when she eats. In her case, the CM as made her gag reflex very diminished. I pretty sure (after closing watching how she eats) that she does take in too much air. I am now using straws and cutting her food into very small bites.

If your children do vomit, can they stop? Karli can’t. I have rushed her to the ER several times because of dehydration. She becomes unresponsive. The anti-vomiting medicine doesn’t work. They just pump fluids back in until she can sit up and not vomit.

Take care,
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stomach aches

Postby emmacos » Wed Oct 17, 2007 4:48 pm


My 16 yr old daughter Helen has cm/sm and mild scoliosis, and she was decompressed in oct 2004. Helen complains a lot of stomach pain and stomach aches - the pain is different from the 'off' stomach and stomach aches she complains of. I try everything to help her, and we have cut out milk, pasta and gluten products to see if that helps her 'off' stomachs - when she gets the pain she often has to come home from school and she says it feels like a tight band round her stomach - then she takes paracetamol and buscopan and I run her a hot bath to lie in - then she sits with a hot water bottle on her tummy until the pain subsides eventually - sometimes she cant even stand up straight because of the pain. Hospital specialists she has seen havent got to the bottom of what causes the stomach pain or stomach aches, so I just think it is all linked to the sm and nerve damage which has possibly affected her bowel and made it sluggish. Thats what I think anyway! You have to come to your own conclusions eventually dont you?!

(Mum to Helen aged 16, cm/sm, mild scoliosis. England)
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Postby okaydorothy » Thu Oct 18, 2007 5:47 am

Kirk who has cm has mentioned a few times that everytime he eats his throat hurts and if feels like he has to throw up. He dosnt throw up, but just feels like it.

His stomach dosnt hurt at all.

maybe its something to do with the tonsils?

stomach pain

Postby Firecracker » Tue Oct 23, 2007 5:54 pm

Hello I am new and my daughter too has severe abdominal pain. My daughter has chari type 1 and had the decompression surgery in 2004 when she was 7yrs old. They only found the chari because they were running test on her severe abdominal pain. She really did not have alot of the symptoms and I was really hopping after the surgery she would no longer have this severe pain w/vomitting. Unfortunatly we are still dealing with severe pain w/vomitting. Her GI doc seems to think its cyclet vomitting w/migraines in the stomach. She has missed out on a great deal of her life and in and out of hospitals because she gets so dehydratted. Her NS doc does not seem to think its relatted to the chari.

Postby lovemyblessings » Sat Oct 27, 2007 1:31 am

Keegan has severe stomach pain at times, too. I've taken him to the ER more than once because his pain was so intense. He's on a daily medication to prevent constipation, but even on that, he still has these pains. he is also on reflux medication. Abdominal migraines were suggested, but he doesn't fit the symptoms. The GI doctor is talking about doing a scope to see if there is any other cause, but I am really beginning to wonder if it is just something Chiarians deal with and there's nothing to be done. :(
Blessed Mommy to six amazing blessings here with us
John 10, Marah 8½, Keegan 7½, Luke 5½, Quintin 4½, and Ruth 3
Caleb Logan expected in August and
And three blessings waiting in Glory, including Selah Marie born @ 17 weeks 4/15/2009
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Postby joeysmom » Fri Nov 02, 2007 6:08 pm

My 9 year old also suffers from severe belly pain. It all started after he developed his chemical meningitis (1 month post-op). He now takes probiotics every night. If he forgets to take them, the next day he is miserable. Taking them in the morning doesn't help as much as taking them at night. Maybe that could help!! Just a thought.
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