SSEP...Evoked Potential

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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SSEP...Evoked Potential

Postby JenniferBetzOT » Thu Mar 18, 2010 8:34 pm

Our daughter has a 4-6 mm cervical (C5-C7) syrinx with no chiari or cord tethering. She also has a 2 mm syrinx from T4 to her conus. Has anyone ever done a SSEP on their child. Several of the hospitals around here do not do them with sedation hence limiting the reliability of the results. I am wondering if I should keep searching for a hospital that does complete this test and if the results were helpful in determining the treatment plan for her.

Thanks.
Jennifer
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Re: SSEP...Evoked Potential

Postby jupes » Sat Mar 20, 2010 8:23 pm

Hi Jennifer and welcome!

My DD has never had a SSEP but I have and know this test would probably be uncomfortable for a small child to have done. Hopefully another parent on here has been through this with their child and can offer more insight.

My DD"s syrinx is similar location but smaller- 3mm (C5-C7) and a smaller syrinx from T3-t12. She also has no tethered cord or chiari. She does have a crowded posterior fossa (chiari 0) which is thought to be the cause of the syrinx. Chiari 0 is a new and somewhat controversial diagnosis that only a handful of experts recognize. What are your DD's symptoms and is she seeing a neurosurgeon who specializes in chiari? It is very important to find the cause of the syrinx since very few are ideopathic. Most Doctors will also do a CINE MRI to make sure CSF flow is adequate too.

As for plan of treatment, we are just monitoring the syrinx and csf flow with periodic MRI/CINE MRI every 6 to 12 months and if symptoms worsen or the syrinx grows she would be treated with decompression. Although she has symptoms her neurological exams are always normal. Is your child having numbness/weakness that is the reason for ordering the ssep?

Keep us updated and hope all goes well with your daughters test!

Julie
14 yr old DD with CM 0/SM and mild scoliosis.
"Trust in the Lord with all your heart and lean not on your own understanding" Proverbs 3:5
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Re: SSEP...Evoked Potential

Postby Sara » Sun Mar 21, 2010 4:01 pm

My daughter had SSEP's when she was 5 yo. They gave her a light sedative to relax her, not true sedation. It was not too bad. mild tingling. An EMG is a muscle conduction test which is very painful. my daughter had both, the EMG she screamed and had to be held down, the SSEP she was fine.
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