Chiari Expert???

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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Chiari Expert???

Postby mommyof4 » Thu Feb 17, 2011 12:47 pm

I have seen a lot of people say that you need to make sure the Pediatric Neurosurgeon is a Chiari/SM expert. How do yo know this? I am trying to decide between two surgeons here in Detroit (Dr. Sood & Dr. Maher). I just want to make sure I make the right choice to avoid complications. Thanks for any information you can give.
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Re: Chiari Expert???

Postby hagiefamily » Thu Feb 17, 2011 1:48 pm

Ask them first, and then check credentials. There are state websites that give you that information. I am new to this conditon also, my 12 yr old daughter diagnoised 10/10, and I find this site has many helpful posts and links to almost anything you need to know.

Mom in Iowa
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Re: Chiari Expert???

Postby memom » Thu Feb 17, 2011 10:15 pm

Ask both NS how many Cm surgeries they have performed. Make sure they have ALOT of experience. Ask for outcome percentages. Research them on-line. Talk to other families who have used them. Ask exactly what type of decompression they are going to perform and why. Make sure you they answer all your questions. Good luck, let us know how things turn out.

Lauri
Mother of a beautiful 9 year old girl with CM 1.5, SM T 5-8 and Hypermobility. Decompressed 7/09.
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Re: Chiari Expert???

Postby youngwife » Tue Feb 22, 2011 10:53 am

A friend of mine (whom is also a member here) uses Dr. Steven Ham at Children's. Three of her seven have had decompression surgeries with him, and now her seventh child has been diagnosed with Chiari.

I don't know if he is considered a Chiari/SM specialist, but she has felt he was the best (in Michigan) for her family.

Here is his page:

http://www.pediatricneurosurgerygroup.net/staff.htm
Homeschooling mom to 6 wonderful blessings from the Lord. ~ "Let no corrupt communication proceed out of your mouth, but that which is good to the use of edifying, that it may minister grace unto the hearers." - Ephesians 4:29
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