New here but not to chiari

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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New here but not to chiari

Postby okaydorothy » Wed Oct 17, 2007 5:53 pm

Hi there
I am Dorothy and my 7 year old Kirk has chiari. Briansmum ; hi again, good to see you again.

Kirk was rx'd with chiari when he was 5 and we are in a wait and see pattern. His last MRI was in 06 and he will have one again next week. He is in 2nd grade and in the past few weeks is getting more headaches, sits out recess a lot under a tree and his teacher is concerned about his lack of socialisation. So lets rule things out. He goes to the nsg in December (first available appt).

Good to hear that Brian is doing so well.

dorothy
okaydorothy
 

Postby brianfsmom » Thu Oct 18, 2007 5:31 am

Hello Dorothy!!

Sorry to hear Kirk is having more headaches. The bright lights are bothering him? Is it possible that it's this Indian summer we have been having? I hear we may be in for more of it today.

Good luck with the MRI. Will you get the results before December? I am surprised you had to wait that long. Business must have really picked up! He must consider it a non-emergency.

Yes, Brian is doing fairly well. Of course, he has found new ways to cause the grays to sprout out of my head, but he passed the neuro exam for one more year, at least. We only see the neurologist now, you probably knew that.

Keep us posted after the MRI :-)
brianfsmom
 
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Postby 4JDAVIS4 » Fri Oct 26, 2007 3:11 pm

BOTH OF MY BOYS (AGES 16 & 11) HAVE CM. THEY USED TO HAVE HORRIBLE MIGRAINES BECAUSE OF IT. I GOT THEM A BOOK STAND FOR THEIR DESK AT SCHOOL TO PROP THEIR BOOK UP SO THE HEAD & NECK IS NOT BENT LOOKING DOWN ALL DAY AT SCHOOL & IT HAS HELPED TREMENDOUSLY. LAST YEAR EVERY DAY MY 11 YEAR OLD JOSH WAS IN OFFICE TAKING MEDICINE FOR HEADACHE. THIS SCHOOL YEAR 1 TIME IN 10 WEEKS. SO PAYING 25.00 FOR STAND WAS WORTH IT. IT FOLDS & FITS IN HIS BACKPACK. GREATEST INVESTMENT FOR THEM EVER. MY NAME IS JANET. MY OLDEST SON IS JR & MY YOUNGEST IS JOSH (BEAN) WE LIVE JUST NORTH OF ATLANTA.
4JDAVIS4
 
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