MY BABY HAS CHIARI AND WARFARIN SYNDROME AND HYDROSIPHALUS

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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MY BABY HAS CHIARI AND WARFARIN SYNDROME AND HYDROSIPHALUS

Postby kosterkids » Sun Oct 21, 2007 8:49 pm

IS THERE ANYONE OUT THERE WITH A CHILD LIKE MINE. I WONDER BECAUSE IT IS HARD TO TALK TO PEOPLE WHO HAVE NO IDEA HOW I FEEL OR WHAT WE ARE GOING THROUGH... IT WOULD BE NICE TO FIND SOMEONE WHO UNDERSTANDS....
kosterkids
 

baby

Postby Sara » Mon Oct 22, 2007 4:03 pm

Hi and welcome. I'm sorry to hear about your baby. My daughter has Chiari/hydro. How old is your child? I don't know alot about warfarin syndrome, but I understand it can produce some serious abnormalities.

I am so sorry you are going through this. What hospital is your child being treated at? Please let us know what type of things we can help you with- finding a doctor, managing or understanding symptoms, or accessibility issues. Does your child have a VP shunt?

Sara
Holly's mom
Sara
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