large cisterna magna & basilar ivagination

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large cisterna magna & basilar ivagination

Postby CJ1921 » Fri Oct 26, 2007 6:12 pm

My son is 13 years old. He had reconstructive neurosurgery for sagittal synostosis as an infant. He has been diagnosed with short stature and had a rathke cleft cyst removed from his pitutitary gland 10 months ago. In pre-op testing, other findings included: basilar invagination/platybasia and a large cisterna magna.

He is currently followed for his endocrine issues and has an annual follow up to make sure the rathke cleft cyst does not re-accumulate.

As of now, the basilar invagination/platybasia are stable. He gets headaches but I have no idea if they are related to any of his problems.

Any thoughts on how I can manage all this? Thank you.
CJ1921
 

basilar invagination

Postby Sara » Sat Oct 27, 2007 8:24 am

An excellent doctor for basilar invagination is Arnold Menezes out of Iowa. He would probably be willing to work with your nsg or consult with you to see if he needs futher treatment. His contact info is:
Chairman
Arnold Menezes, MD.
http://www.uihealthcare.com/directories ... n/410.html
Professor and Vice Chairman
Department of Neurosurgery
http://www.uihealthcare.com/depts/med/neurosurgery/
University of Iowa
Hospitals & Clinics
Iowa City, Iowa
Sara
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Dr . Menenez

Postby razzle51 » Sat Oct 27, 2007 12:23 pm

I choose not to place "DIS" in my ability.

There is a light at the end of every tunnel....just pray it's not a train!.

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