Chiari specialists in NC, SC or GA?

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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Chiari specialists in NC, SC or GA?

Postby camsmom » Fri Feb 29, 2008 9:49 am

We live in upstate SC (Greenville). Our 3 year old who has autism had an MRI. The MRI showed Chiari malformation. We go in next Wednesday to see the films and talk to the neurologist more. I'm trying to think ahead: if he recommends surgery, do y'all have anyone you'd recommend in SC, NC or GA? My niece also had this and had surgery when she was 4 months old. She now sees Dr. Fuchs at Duke in NC.

I really, really appreciate any recommendations or guidance y'all can provide! Thanks!
Melissa
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Postby angie7 » Fri Feb 29, 2008 10:17 am

Honestly if either of my twins had CM, I would travel to Dr Frim in Chicago or Dr Menezes in Iowa. They both are specialists in this disease and deal with peds as well.
Mama to 4 y/o ID twin girls (2006)
CM 0, C5-T1 syrinx, Scoliosis, Hypotension; PFD 2004
Deg Disc C4/5,Cervical Kyphosis-repaired 07 w cadavar bone graph & plate w 4 screws
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Postby SMLady » Fri Feb 29, 2008 1:48 pm

Hi. I'm so sorry about your daugher's diagnosis. And your niece - 4 months old? How scary. I mean I would imagine the surgery is scary enough in itself, but on a 4-month old? I hope it was successful.

Good look in finding a doctor you're comfortable with. There is a woman on this site who has a listing of all the good doctors. I'll make sure she sees this.

Take care.
Proud Mom of One Son
Idiopathic SM T1 - T9, DDD, Scoliosis, Pinched Nerves, Bulging Discs, Spondylosis, Stenosis
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The Man who walks with God always gets to his destination.
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ped nsg

Postby Sara » Sun Mar 02, 2008 1:44 pm

Dr Jerry Oakes- Alabama
http://www.neurosurgery.org/sections/di ... sonId=5341
There are lots of great ped surgeons in NC too, Fuchs is definetly one that has a good reputation.
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Postby JWatson » Sat Mar 08, 2008 2:22 pm

My son had surgery on 12/28/07 at Duke and Dr Fuchs is his doctor. He was great and would highly recommend him. Tyson had cm1 with very poor spinal fluid flow. He has recovered well.
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Postby youngwife » Sun Mar 09, 2008 6:41 pm

The only chiari expert in that area is Dr. Michael Rosner in Fletcher, NC.

http://www.mjrosner.com

We travelled from Mississippi to see him, and he is fantastic.

If you have any questions, I will be happy to help.

Rebecca
Homeschooling mom to 6 wonderful blessings from the Lord. ~ "Let no corrupt communication proceed out of your mouth, but that which is good to the use of edifying, that it may minister grace unto the hearers." - Ephesians 4:29
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Great Doctor

Postby HARCSKRIMP » Wed Mar 12, 2008 7:05 pm

My daughter was diagnosed with CM 6 years ago. We had a WONDEFUL experience with Dr. Scott McLanahan in Charlotte, NC. He has many years of experience and was extremely knowledgeable. His entire staff was comforting and supportive.

HChristopher
Mother of Laney, suffered (35 degree) scoliosis but now is a healthy young lady with only a 6 degree curve.
Rock Hill, SC
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Postby Beach4me » Sun Mar 16, 2008 4:53 pm

We saw Dr. Fuches (Duke) this week. I felt very comfortable and that he was patient in listening to all my questions. I was really impressed with how he spoke directly to my daughter, showed her pictures and explained it on her level. She liked him as well.

But liking a Dr. and trusting his skill is two different things.
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