anyone from indiana

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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anyone from indiana

Postby carrie » Wed Jul 04, 2007 10:12 am

Hey all, anyone her from indiana? Who do you take your kids to? My son is scheduled to see Dr Jodi Smith @Riley Hospital next week. I'm just not real sure about the indiana ped's docs. I had horrible experiences with adult NSG and ended up at Cleveland Clinic for my DX.
carrie
 
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Joined: Sun Jun 17, 2007 11:25 am

Postby melanie » Sat Jul 07, 2007 2:56 pm

hi,
I'm from indiana ,a great ped ns is dr boaz ,hes also at riley and iu med
with my bouts with sm and cm he was referred to me even though I am an adult and h is recommendation helped my ns fix my probelm.
melanie
 

Postby angie7 » Sun Jul 08, 2007 8:16 pm

I am from southern Indiana. I see Dr Oro in Colorado for myself but I have heard that Dr Frim in Chicago is wonderful. I know if my kids start having problems, he will definately be the one they see. Where in Indiana are you?
Mama to 4 y/o ID twin girls (2006)
CM 0, C5-T1 syrinx, Scoliosis, Hypotension; PFD 2004
Deg Disc C4/5,Cervical Kyphosis-repaired 07 w cadavar bone graph & plate w 4 screws
angie7
 
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Joined: Fri May 25, 2007 8:29 pm
Location: Florida

Postby melanie » Sun Jul 08, 2007 8:53 pm

angie-
I am about an hr from indianapolis to the northwest.
Dr. Boaz did teach at IU, the up incoming ns
after 4 decompressions and a shunt placement ,I saw him and he helped my ns fix the probelm with great success ,I was one of those cases.....
I would possibly see him again if probelms arose ,theres not much to pick from here in this town that knows about sm,cm,or shunts....





sm-c3 to t8
cm-decompression-june4 02,jan13 03, feb, march6 03 and shunt may6,03
melanie
 

Dr. Jodi Smith

Postby JustMom71 » Wed Sep 05, 2007 4:03 pm

I wish I had checked this a couple of months ago. My son was decompressed by Dr. Jodi Smith, and we are very happy with her. She was great. He has made many improvements. He is a new child. His decompression was April 2, 2007.
JustMom71
 

Indiana resident

Postby Lynn » Mon Oct 29, 2007 6:33 pm

We live in southern Indiana and recently returned from Chicago from a visit with Dr. Frimm. Our 9 year old son is scheduled for Chiari Decompression surgery on December 24th. He has CM and a syrinx from T2 - T8. We have been battling symptoms since Feb. 2004 and after bouncing from doctor to specialist and back again, Dr. Frimm has finally given us an answer. I know we can't comment on the surgery yet, but we believe God has led us to the right place.
Lynn
 


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