*Upcoming Surgery Dates*

[cheryl]

Best of luck for a successful outcome , I will be thinking of you , love & hugs Cheryl

[bkbamma]

Hi
I am scheduled for PFD surgery June 4th,09 here in Portland OR.
This will be my 4th surgery in 11 months and hopefully my last for some time to come
In addition to CM I also have Intracranial Hypertension with LP Shunt.
CM shows currently 6.9mm herniation and less then 49% CSF flow.
I will keep posted after surgery.
Bless you all!
Bev

[donny]

Heidi will be having tethered cord release on july 2
Don

[Eden**]

Scheduled for a subarachnoid shunt laminectomy Sept. 8th. Wish me luck!

[keggler]

Hello to all-
----And to say my surgery was 12/07 PDF and I'm feeling great,rode by mountain bike to the store yesterday.Yes there is good outcomes,seems like we only read about the problems. Go into surgery with a great attitude,and expect it to be a success. Also saying a little pray doesn't hurt and done forget your Doctor.

YOU'LL ALL BE FINE!!!!
s
Later and ...GBWY...Jerry in Carolina...

[tpearson]

Our 13 year old Grant had PFD with craniotomy and cervical fusion of c-1 and c-2 at the University of Iowa In Iowa City on March 31st. We are 3 months out and his headaches are significantly better. He is wearing a Manerva Brace 24 hours a day and has tolerated this well. His reflux is so much better and his food doesn't stick in his throat any more. He was dx with chiari one malformation last year. Will be wearing this brace until at least October. Thanks for this forum. I am happy to post positive news. God Bless. Toni

[Tolarn]

NIH is removing a Bone in my Skull to increase flow around Chiari 1 malformation on August 17th.

[bluebaby01]

My daughter Missy Van Why age 16 she has CM1 and is scheduled for her Chiari decompression on 9/10/09 @ shands in Gainesville Fl.

[youngwife]

Rachael is having tethered cord release on Aug 25th. Thank you!

[MommyToMyCuties]

My daughter Natasha (7) will be having Postier Fossa Craniectomy (PFD)& C-1 Laminectomy on Sept 8th w/ Dr. Ellenbogen.

[MichelleW]

I am scheduled for removal of a tumor and placement of a shunt at C3 to drain a very large syrinx, on Sept 9, 2009.

Please pray...

[Freebird]

My husband Bill (Freebird) is having shunt surgery on Aug 31st. Please keep him in your prayers. Thank you.

~Dawn

[pattip448]

Matthew Phillips age 17 will be undergoing tethered cord surgery today at Foothills Hospital in Calgary Alberta.


Patti HEDS mom of Matt 17 with cm1 TC and HEDS and John 16 HEDS

[joshhearne]

I'm going in for my PFD and Laminectomy (C1) with Duraplasty on 10/21*. Will have Dr. Robert Jackson of Dallas Neurosurgical do the surgery at Presbyterian Hospital of Dallas.

*Edited: date was postponed a week.

[Indigo]

I'll be having pfd surgery Nov. 6.