can arnold chairi malformation come back after sugry

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can arnold chairi malformation come back after sugry

Postby shawnfen » Mon Jan 26, 2009 4:29 pm

Hello my name is shawn and i have had the arnold chiairi malformation sugry ,i had mine when i was 40 yrs old and i have been doing real well up till the last few moths ,well i am 45 now and i need to ask some one else that may have had it do they know if it can come back after sugry ,,only for the fact that i have been haveing real bad headacks and a lot of neck pain ,just like befor the sugry so if anyone knows well you please let me know you can email me at shwnfender@yahoo.com and ty very much ..
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Re: can arnold chairi malformation come back after sugry

Postby 3willowsfarm » Wed Feb 25, 2009 3:05 pm

Hello shawn. Yes, it is my understanding that you may need to be decompressed more than once. I would go to ns, or neurologist for another mri to check on the csf (flow study). this would indicate whether you need another surgery.
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Re: can arnold chairi malformation come back after sugry

Postby tattoodlb1 » Wed Mar 04, 2009 12:01 pm

Hi,

Great question, in my research and through getting to know other ASAP members, decompression surgery is only to slow the progression of this condition and you could get the same symptoms again (as you seem to now have).

I hope you can get your situation under control and I wish you the best.

This is a great site and you will find there are a lot of helpful folks here...

Hugs
Syringomyelia entire spinal cord including throughout conus, Chiari ? Hemangioma T2, Multiple Tarlov cysts; Empty sella & degenerative disc disease entire spine.. severe Fibromyalgia (central cord hypersensitivity).
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Re: can arnold chairi malformation come back after sugry

Postby amber4949 » Wed Mar 04, 2009 10:47 pm

I don't know much about whether it can come back or not. My main input is that you should see a neuro surgeon since neurologists do not seem to be nearly as knowledgeable on the subject.

Amber
Chiari Malformation: 1 cm
Syringomyelia: 7 cm (C1 - C5)
Decompression surgery scheduled: 2/24/09
NS - Dr. Heilman Tufts Medical Center, Boston, MA
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Re: can arnold chairi malformation come back after sugry

Postby djones » Mon Aug 03, 2009 7:51 am

Make an appt with a NS, I'm sure s/he would order an MRI/CINE MRI to have a look at what's going on and make sure you have good flow, etc.

Don't let it go :)

Debbie
CM1 13 mm w/syringomyelia C1-T10
Diagnosis and Decompression 2/2007
2nd Decompression and Duraplasty 9/29/2008
3rd Decompression, Duraplasty, etc. 6/23/09
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