Mitochondria disease

Have a child with SM/Chiari? Share issues unique to children and their caregivers.

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Mitochondria disease

Postby Lipper5 » Fri Sep 24, 2010 8:41 pm

Has anyone heard of this? Dealt with this? Dealing with this? We just heard that this might be something our son has. Any and all info would be GREAT!

Krista
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Re: Mitochondria disease

Postby lttutrow » Fri Sep 24, 2010 10:05 pm

I haven't seen any numbers about this relationship in any study yet, but I know I've met several families who have children that have a Chiari and Mito. Do you do facebook? If you'd like, you can "friend" me, and I can name you in a post to have the other CM/Mito moms friend you if you'd like to talk to other parents?
Lori Tutrow
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Re: Mitochondria disease

Postby lttutrow » Fri Sep 24, 2010 11:04 pm

Here is a link to one CM/Mito Mom and her daughter who just did an interview about Mito:

http://www.exceptionalfamilytv.com/blog ... -awareness

I'm not very good at posting links, but if you copy/paste it to your browser, it should work that way.
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Re: Mitochondria disease

Postby Lipper5 » Sat Sep 25, 2010 1:25 pm

I am on facebook...How do I locate you to friend request?
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Re: Mitochondria disease

Postby lttutrow » Sat Sep 25, 2010 8:47 pm

My name is Lori Tutrow, and my profile pic has my husband with my daughter and red headed son on each side of him.
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Re: Mitochondria disease

Postby Lipper5 » Sat Sep 25, 2010 9:20 pm

I searched your name tonight and nothing came up. Try me- Krista Lipsky
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Re: Mitochondria disease

Postby lttutrow » Sat Sep 25, 2010 11:25 pm

I think I found you and sent a friend request. I didn't realize I had my privacy setting on 'friends only' who could search for me, I've fixed it now hopefully :) .
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