ASAP.org on Medical Wesite

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Moderator: pmaxwell

ASAP.org on Medical Wesite

Postby vickiec » Thu Jun 23, 2011 1:54 pm

I was looking up something on the Maryland Medical website and decided to check out what they had to say about Syrinx and they listed ASAP.org as a good place to tlearn about them and Chiari and to talk with people who also suffer from these diaseses. I found it very interesting cause I know for a fact that coming to this site helps me to know there are others out there going through the same issue as I am.
Thank you ASAP you are a relief in my life.

Thank you
Vickie
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Re: ASAP.org on Medical Wesite

Postby gunflint » Thu Jun 23, 2011 3:09 pm

This site is the first light at the end of the dark tunnel you fall into when first diagnosed.
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Re: ASAP.org on Medical Wesite

Postby pmaxwell » Thu Jun 23, 2011 10:02 pm

Thank You! You have made today worthwhile. I've been with ASAP since 1990 and keeping a non-profit afloat is not an easy job. Knowing that people are fighting a battle that has no cure is heartbreaking. Listening to a parent who is worried about the future of their child. Watching adults suffer with symptoms that wreak their lives. The list goes on and on but I know that the only way we can win is to continue to band together and let the world know we are not going to give up. So thank you for reminding me that what I do does make a difference in some small way.

Patricia
Together We Can...
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Re: ASAP.org on Medical Wesite

Postby tennesseewalker » Sat Jun 25, 2011 3:14 pm

Patricia, what you do makes a difference in a HUGE way. Thank you, thank you, thank you.

Mary
Mary
Genetic CM/SM (me, my son, my twin sister and both of her daughters), RSD of right arm.
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Re: ASAP.org on Medical Wesite

Postby June » Tue Jun 28, 2011 11:33 pm

Patricia - Thank you.
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Re: ASAP.org on Medical Wesite

Postby razzle » Wed Jun 29, 2011 10:50 am

thank you thank you :P
Once you choose hope, anything's possible.

Roz( Razzle51 or Rosalyn
Iowa
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Re: ASAP.org on Medical Wesite

Postby pmaxwell » Wed Jun 29, 2011 1:13 pm

You are all so wonderful and the reason why I do what I do. But I don't do it alone. So - Thank You!
thank you for spreading awareness
thank you for supporting others who need a shoulder to lean on
thank you for keeping ASAP alive and thriving
thank you for never giving up
thank you for being strong even when you don't think you are
Together We Can...
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