Spastic Hypertonia, anyone?

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Spastic Hypertonia, anyone?

Postby karenb » Thu Feb 16, 2012 2:10 am

Hi All,

Is anyone familiar with the symptoms of Spastic Hypertonia, or with how it's diagnosed?

Thanks!

Karen
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Re: Spastic Hypertonia, anyone?

Postby razzle » Thu Feb 16, 2012 12:55 pm

Isnt that mylonic jerks ? I have those but take Keppra for it and dont have anymore . Thats about all the dr said ... something to do with the muscles
Once you choose hope, anything's possible.

Roz( Razzle51 or Rosalyn
Iowa
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Re: Spastic Hypertonia, anyone?

Postby karenb » Sat Mar 03, 2012 6:55 am

Hi Razzle,

I was asking because it's at least a name for the myoclonic jerks - except that nobody ever called them that... they just say it's "strange behavior" that they haven't seen before. I've even had doctors tell me that I'm making it up and it's just psychiatric!

Karen
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Re: Spastic Hypertonia, anyone?

Postby syrinx48 » Sat Mar 03, 2012 10:47 am

I have them too. We call it spasms or myoclonias. When à specialist see them for THE first time I have to explain what is going on. Even though I am on medication, I have them still quite severe when provoked. I call them breaktrough spasms. I can get out of it by changing position, or pay attention to my breathing. Luckely the specialiste who has seen them didn't adress them as psychiatric, but only feel sorry for me.

My NS wanted me to walk faster which I can't for the spasms starting to kick in. Despite he knew hè wanted me to do it so hè could see. And there they came. Hè felt so sorry for letting me do that, that he kept asking what he could do for me. I told him to get a wheelchair so that I could come to the car, which was driven by my DH.

Annemarie
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Re: Spastic Hypertonia, anyone?

Postby karenb » Sat Mar 03, 2012 6:50 pm

Annemarie,

Unbelievable! None of my doctors seem to recognize that they're real. Even the head Physiatrist at the Rehabilitation Hospital has never seen them except with me. Then I'm reading the literature, and just stumbled across the term.

Karen
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