TIPS FOR LIVING WITH SM/CM

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Re: TIPS FOR LIVING WITH SM/CM

Postby karenb » Mon Apr 25, 2011 6:09 pm

bump
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Re: TIPS FOR LIVING WITH SM/CM

Postby karenb » Sun Jun 12, 2011 3:35 pm

bump
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Re: TIPS FOR LIVING WITH SM/CM

Postby wendi » Wed Aug 03, 2011 7:49 am

Bump for the newbies!
ACM 7.5mm B4 TCS 2.4mm post op
TC ,TCS @ TCI on 1/3/08,
chronic sacrolitis
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Re: TIPS FOR LIVING WITH SM/CM

Postby karenb » Sun Jan 08, 2012 12:18 am

bump
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Re: TIPS FOR LIVING WITH SM/CM

Postby aaylajm212 » Sun Jan 08, 2012 5:28 am

I really love that you mentioned NO DEEP TISSUE Massage and that you said No Chiropractor my family and husband were thinking that would help me.... I had a feeling that would not be a good Idea.
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Re: TIPS FOR LIVING WITH SM/CM

Postby wendi » Mon Mar 05, 2012 1:41 pm

bump for the newbies!
ACM 7.5mm B4 TCS 2.4mm post op
TC ,TCS @ TCI on 1/3/08,
chronic sacrolitis
wendi
 
Posts: 3346
Joined: Thu Aug 16, 2007 9:48 am
Location: Whitehall, Pennsylvania

Re: TIPS FOR LIVING WITH SM/CM

Postby LANERS » Sat Mar 10, 2012 10:33 am

pfb1977 wrote:I have to work about 50 hours a week and I have sm. It is very hard but a must as I am in management. I highly reccomend (if you can afford it) to hire someone to clean for you. I have someone come every 2 weeks to sweep, mop, clean tubs, vacum etc. I sleep most of the time when I'm not working so i don't have the time or energy and it hurts me to do these things.

I feel the same way. I also work in management 50+ hours per week and I am exhausted when I get home from work. I cannot keep up with household work. I need to hire someone to do it for.me.
SM C5-T11/ Disc Buldge C6-C7 / Mild Scoliosis
DX July 2009
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Re: TIPS FOR LIVING WITH SM/CM

Postby karenb » Sun Mar 11, 2012 8:17 pm

Hi y'all,

Even though I'm on disability now, I still have a housekeeper who comes in every other week. From the time I was diagnosed, most basic housekeeping activities (sweeping, mopping, vacuuming, cleaning the bathroom, ...) were all forbidden by my neurologist, since they could all make my syrinx expand.

Karen

P.S. I find that I actually need a housekeeper more now than at first - since I'm home all the time now, things tend to get messier!
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Re: TIPS FOR LIVING WITH SM/CM

Postby phyrehawke » Fri Jun 15, 2012 10:54 am

Bump
"A path of awakening would never suggest that we should be a passive and unwitting spectator of our own repeated disasters, but should turn the power of our attention to untangle the web of complexity." Christina Feldman
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Re: TIPS FOR LIVING WITH SM/CM

Postby Dcuster » Thu Jun 21, 2012 5:17 am

What I did about telling a friend is this: I sent him the link to all the Video's Dr. B has done. http://www.chiariinstitute.com/Videos/index.html this helps a lot coming from a an expert. My new Fiance is watching them now, he started yesterday and he said that it does help him to understand.

Hickschip I do miss you from the old days. I have been around on this board for over 10 yrs now and I learn stuff every time I read peoples post. I normally have my morning coffee with this board.

lots of good advise on here if only I could make myself do it lol.

Take care everyone.
SM t10-T12 2.5 x 1.1 cm in dia, thorasic shunt 2002,
Pineal Cyst, C5-C6 fusion 2005, Lumbar L2-L6 w/4 level fusion with hardware 2006, adrenal gland tumor, 7-8 thyroid nodules, 2008 C4-C7 Corepectomy with hardware.
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Re: TIPS FOR LIVING WITH SM/CM

Postby TabulaRasa » Mon Jul 16, 2012 9:48 am

I'm not a severe case, but this had a lot of tips that I can use! I just ordered my medical ID bracelet too. I put "be careful with my head" on it since not many in the emergency medical profession know about our condition.
Diagnosed with CM 1mm herniation June 12th, 2012
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Re: TIPS FOR LIVING WITH SM/CM

Postby syrinx48 » Thu Aug 02, 2012 9:10 am

bump
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