Yet another Doctor

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Yet another Doctor

Postby lady 59 » Fri Sep 24, 2010 12:38 am

Hi to everyone,
Well on Monday I went to yet another dr., this one a pain management dr. I was told be there 1/2hr. early to fill out papers........well try over an hour later I finally got all 13 pages done!! I've heard of questions, but that was just ridiculous. Then I was taken in to see the PA, that was over an hour. Guy had an attitude plus said some things that made me feel he was putting me down. One thing he told me was I didn't have foot drop, I've seen many dr.'s over the last 10yrs and they've all said that is what is wrong with my left foot! So it didn't start out very good or get any better as time went on. My sole purpose of going there was to find out about getting a pain pump. When I finally saw the "real dr" he was a fast talker, never looked at my MRI's or reports that I had to bring. Right away said well you have two options, stay doing what you are doing or 2 I'll put a pump in, but it could take a year for it to all work out. He went on to say that he had to warn me if the pump should run out it could be a life or death situation!! Oh yeah it won't be morphine either, it would be baclofin. I'd have to get to a hospital right away. Then after we talked about that he said I'd have 12 hours to get there??!! He said a few other things that didn't make sense to me either, he say it one way & then change it to another story....needless to say I doubt very much I'll be going back there...yes I really think it's time for a pump but not with someone who I don't feel I can trust or speak to on comfortably. So it's on to the next on the list, after I see my NL next month. I want to see what he has to say, I can fully trust him, he is just a wonderful doctor.
Sorry to be so long again, it's 1:30am, can't sleep again, pain is awful & worse when I lay down. Plus I'm a little ticked with my other half right now, he's a great caring loving guy, but lately we don't communicate. If he is in the same room as me his nose is in his newspaper or he's out in outter space. If I'm awake he goes right to sleep. The one time I thought maybe I could go to sleep tonight he decides he's not tired and wants to watch TV, any other time he'd roll over and be out in 2 minutes!! I guess I'm just frustrated with everything and being in such pain 24/7 doesn't help matters either.
So once again I'm sorry for going on & on. Hope everyone has a good weekend and a safe pain free one also:)
Thanks,
Mary
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Re: Yet another Doctor

Postby wendi » Fri Sep 24, 2010 1:17 pm

Mary, if you aren't comfortable with him, then no, don't let him do your pump as that is surgery and you want to like your surgeon and feel like you are in good hands. See if you can find another one.

My friend who had fusion surgery had the pump and it was diloudid that went in her spine. It probably depends on the Dr doing it.

Wendi
ACM 7.5mm B4 TCS 2.4mm post op
TC ,TCS @ TCI on 1/3/08,
chronic sacrolitis
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Re: Yet another Doctor

Postby lady 59 » Fri Sep 24, 2010 1:23 pm

I would not let him do it, I've been around enough dr's lately to know right off whether or not to trust them. So I'll keep looking. And funny you should mention diloudid, a friend of mine also just start that in his pump. He's going through a rough time of adjustment though, but nat least he finally got some help. He's been bedridden for over a year now.
Thanks for your reply,
Mary
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Re: Yet another Doctor

Postby Janice » Wed Sep 29, 2010 10:24 pm

My 2 surgeons rejected the idea of a pump for me. Give my whole history with meds, my history in general, my very high tolerance to pain meds, my syrinx not being stable, etc., etc., they declined the recommendation from the pain management doctor. I was totally frustrated and upset but in the end, and also discussing the situation with DH, I can understand why it wouldn't be the best idea for me. I was really looking forward to finally, maybe being out of pain. I would've had Dilaudid and Baclofen.

Definitely wait until you're comfortable with the PM doc, and find out if the that's the doc who will do the surgery, or if another doc will perform it. My PM doc wasn't the one performing the surgery.

Generally, it's a Baclofen pump that will be inserted but they can also run Dilaudid (or other med) with the Baclofen. There are other types of pumps available and that's what you'll need to discuss with the surgeon and PM doc.

As for the paperwork, I usually ask them to send me the paperwork when I schedule the appointment. I can fill it out and take it with me to the appointment. I do that with any new doc because they all have some type of paperwork for you to fill out, especially specialists and PM docs.

I hope you are able to find a doc to perform your surgery. There's a trial period that comes first, and yes, once you get the actual pump, you have to work up to an amount of med that will work for you. That said, sounds like the doc was giving you an estimate of a year before you're really good to go with it.

Take care,
GOD Bless!
Janice

Thoracic: SM T3-T12 / Disc Buldge T7-T9 / Mild Scoliosis
Cervical: SM C2-C6 / DDD / Kyphosis
Hemangioma's: T9-T11 & L4

http://janice-mylifewithsm.blogspot.com/ (Copy & Paste link into your browser)
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Re: Yet another Doctor

Postby mbgc1 » Thu Sep 30, 2010 1:20 pm

Mary,

I know it is a bit of a drive, but the pain doc that Wendi has in Lehigh Valley may be worth it for you.
the pump doesn't have have to be checked all that often right?

Do you go to Geisinger WB for your NL? Or a Geisinger in your area, if it is WB, it is a hop on the Turnpike to Lehigh Valley.

Just a thought.

Sorry about the sleep thing... Lord I know how you feel.. At least I get about 2 hours at a time though.

Mary
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Re: Yet another Doctor

Postby wendi » Thu Sep 30, 2010 1:34 pm

I go to Valley Pain Specialists, PC, 4250 Fritch Dr, Bethlehem, PA 18020, phone # 610-954-9093. They are off Rt 512.

Wendi
ACM 7.5mm B4 TCS 2.4mm post op
TC ,TCS @ TCI on 1/3/08,
chronic sacrolitis
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Re: Yet another Doctor

Postby mbgc1 » Thu Sep 30, 2010 7:27 pm

Thanks Wendi.

although I haven't been able to go to them yet due to my need for constant blood transfusions and iron infusions, they were extremely helpful.

Also note.. You do NOT need a referal from your doc to see them. They ask that you fax the notes from your last visit and they review them and then call you to set up appont based on that.. So there is one step and some time removed..

Again..Thanks Wendi..You gave me the lead on them As soon as I am able..Hopefully ,this month I will be able to make my appt and go see them..No more crazy NL :cry: :lol:

Mary (bayveiwer) You have traveled so much, maybe one more shot at a trip wont hurt?? Hell maybe we can get appontments on the same day 8)

((())))
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Re: Yet another Doctor

Postby lady 59 » Thu Sep 30, 2010 8:02 pm

Thanks all for your input. I was thinking LV, I go to the NL in a few weeks and I'm gonna see what you has NEW to say, haha. I think though I will be making an appt. there, it's no further than if I went to Geisinger in Danville, that's about 2 hours also. I just want some sleep one of these days....oh yeah the "other half" was going to put up the air bed for me about 20 times now and stil hasn't, believe it or not when we used that when we went away I could actually get a little more sleep, so I have to get him to do it tonight or tomorrow!! It's just that I'll probably have to put it in the LR for now, ugg just what I need in there the price we have to pay for our illness!
Thanks again, take care and have a good weekend,
Mary
ps. hope everyone is safe with all the rain we are getting here, already have 3 inches today!
lady 59
 
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Re: Yet another Doctor

Postby mbgc1 » Thu Sep 30, 2010 11:13 pm

Just so you know, from what I was told, the pain clinic in giesinger doesn't offer pumps or drugl (lol) they offer nerve blocks of the epidural and spine. This is what they told me. I see Dr. Robinson in Danville for my NL. She wants me gone :shock: says she is a movement specialist and will no longer provide pain meds and is not comfortable with treating me... she got the luck of the draw when I was schduled. I see her on the 12th problably for the last time. She has had to follow me untill my blood counts are up at least a little and I see my hemo/onco before her so we will see...

I would make a call over to the pain clinic at giesinger Danville and wyoming valley to see what they offer . My referal was just a few months ago and even though they were told nothing with my epidural could be done (duhhh csf problem) they said thats what they do and they don't do pumps or drugs.. It was like they were warning me off as a "drug seeker" even before even meeting me, and that was with my little old referal from within the old boys club that is giesinger.

So make some calls before waising time...


Make that man set up that air bed , no matter where it has to be !!!! And insist it be tonight!!! We all feel better and can make better desicions after a few hours of sleep :!:
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Re: Yet another Doctor

Postby lady 59 » Fri Oct 01, 2010 12:39 am

I guess I got lucky w/Geisinger in WB NL, I see Dr. Gross there. He's the best, I trust him so much, he is just wonderful. I can't say enough good about him. I see him every 3 months for well over a year now & he still takes at least an hour each visit with me. He's said to try else where for things, besides he's not old, so maybe he's not in the "good old boys" club,lol..
Thanks
Mary
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Re: Yet another Doctor

Postby gncrzy3 » Wed Aug 15, 2012 11:48 am

Did you ever get the bacolfen pump? I am being sent for
An eval for one and really want to talk to some one who has
Undergone this procedure
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Re: Yet another Doctor

Postby razzle » Wed Aug 15, 2012 4:05 pm

that was posted in 2010 so dont know if she got it or not .... havent heard from Mary in a long time
Once you choose hope, anything's possible.

Roz( Razzle51 or Rosalyn
Iowa
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Re: Yet another Doctor

Postby gncrzy3 » Wed Aug 15, 2012 5:08 pm

Ok well thanks for your help
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