Referral Denied?

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Referral Denied?

Postby eebogan » Wed Oct 24, 2012 8:21 am

Has anyone had a referral to a neurosurgeon and you contact them because you haven't heard from them, by the time you talk to the receptionist she says that I have to see a neurologist first? I was really upset so I finally asked her, "So I can't see the neurosurgeon?". She said no.

I sobbed.

She told me to contact my doctor who referred me and they would explain it.

On a sidenote, I have been to four and about to be on my fifth neurologist and I was so excited to see him because I have been waiting for three years for a referral. The thing is, my family doctor is the only kind of working with me and even that is a stretch now a days. I feel like that harder I try to get things done, it gets put off longer. I had a Cleveland Clinic appointment on Sept. 12, 2012 and he recommended a lumbar puncture and said my PCP could refer me. Well, I still haven't had one and not even close to it. It has been a mess. He also ordered a MRV which I got the paper order and went through the hospital and did it myself (which had a lot of complication- I had to wait in the waiting room at medical imaging for quite some time). Does anyone else have these problems:

1. Doctors giving up on you.
2. Being denied to be seen.
3. Being left to do everything yourself.

The last thing I want to add is, I believe Gunflint told me about Dr. Edward Benzel at Cleveland Clinic and I am going to ask the neurologist I saw there (Dr. Stefan Dupont) for a referral. Any ideas? I just don't think I can get anything done here in Dayton, Ohio. No one knows about SM or CM and it makes me sick.
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Re: Referral Denied?

Postby pmaxwell » Wed Oct 24, 2012 11:17 am

I know places like the Cleveland Clinic require you to see the neurologist first. I believe the reason behind that is they work as a team. The neurologist does the workup and then I assume conferences with the team and they decide the next step.

I don't understand the other, why they are not setting up the necessary test and exams. That just seems like a big failure on their part to do their job.

In my experience the waiting seems to be protocol for medical centers and any place else these days!

Keep pushing, I know you probably don't feel like it most of the time but hopefully it will pay off in the end.

best wishes,

Patricia
Together We Can...
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Re: Referral Denied?

Postby Andrea » Thu Oct 25, 2012 7:25 am

I'm sorry you are having such difficulty. When I was diagnosed I had no guidance on where to go exept the radiologist told me to get into a ns within the week. Called the neurologist office (we have to go through them first too. I'm in Canada) and couldn't get in for a long while even though it was more than urgent. My gp went to bat for me and got me an appointment that day. Through this whole process Ive had to become an advocate for myself. Sucks but sometimes you have to be a pita just to get what you want. I hope you get it sorted soon!
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Re: Referral Denied?

Postby razzle » Thu Oct 25, 2012 7:47 am

never had that problem , if my Dr thinks I need to see a certain specialist , I see that specialist . She also asks if there is any Dr . in that group that I would rather see.. I say yes or no it doesnt matter...

thats crazy , your drs office should have known that ...
Once you choose hope, anything's possible.

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Iowa
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Re: Referral Denied?

Postby tennesseewalker » Sun Nov 04, 2012 1:17 pm

Docs are funny like that...they don't want to see patients they can't help. Especially neurosurgeons. They do brain/spine surgery, and only take referrals from docs who firmly believe their patient needs brain/spine surgery to avert an emminent catastrophe (like a brain tumor). Their entire practice consists of those who need surgery, are having surgery, or are recovering from surgery. Period. They can look at your MRI and tell you whether or not you will need surgery. If not, then you are not their patient, and they tell you to see a neurologist. They are not being mean or uncaring, they are just doing their job. I've always heard that neurosurgeons have the worst bedside manners.
Mary
Genetic CM/SM (me, my son, my twin sister and both of her daughters), RSD of right arm.
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Re: Referral Denied?

Postby eebogan » Tue Nov 06, 2012 2:15 pm

That makes sense. I think it might be time for another round of tests.
Idiopathic Syringomyelia. Fibromyalgia.
"Life is what happens when you are busy making other plans." ~John Lennon
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Re: Referral Denied?

Postby bettyj » Fri Jan 25, 2013 11:44 am

eebogan wrote:Has anyone had a referral to a neurosurgeon and you contact them because you haven't heard from them, by the time you talk to the receptionist she says that I have to see a neurologist first? I was really upset so I finally asked her, "So I can't see the neurosurgeon?". She said no.

I sobbed.

She told me to contact my doctor who referred me and they would explain it.

On a sidenote, I have been to four and about to be on my fifth neurologist and I was so excited to see him because I have been waiting for three years for a referral. The thing is, my family doctor is the only kind of working with me and even that is a stretch now a days. I feel like that harder I try to get things done, it gets put off longer. I had a Cleveland Clinic appointment on Sept. 12, 2012 and he recommended a lumbar puncture and said my PCP could refer me. Well, I still haven't had one and not even close to it. It has been a mess. He also ordered a MRV which I got the paper order and went through the hospital and did it myself (which had a lot of complication- I had to wait in the waiting room at medical imaging for quite some time). Does anyone else have these problems:

1. Doctors giving up on you.
2. Being denied to be seen.
3. Being left to do everything yourself.

The last thing I want to add is, I believe Gunflint told me about Dr. Edward Benzel at Cleveland Clinic and I am going to ask the neurologist I saw there (Dr. Stefan Dupont) for a referral. Any ideas? I just don't think I can get anything done here in Dayton, Ohio. No one knows about SM or CM and it makes me sick.


Me, I have been to 4 going on 5 now, was just turned down by Dr Heiss clinic study as it is a unopertune area for surgery was all the nurse said, and wished me luck. Looking for another study;(
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