Hello all,
It has been quite a while since I visited the ASAP boards! I was diagnosed more than 3.5 years ago, surgery a little more than 3 years ago and I had two relatively normal years following surgery. Now, all pre-surgery symptoms are back, along with some new, frightening symptoms. I have recently been approved for MO HealthNet (Missouri Medicaid) insurance after a little more than a year of being without insurance. I previously had private insurance which allowed me to choose nearly any doctor of my choice and I also lived in a large metro area (Kansas City) with a number of neurosurgeons to choose from. I now live in Springfield, MO and have not yet found or heard of any NS in this area who is knowledgeable in CM. I am looking for any and all recommendations in these three states and I can research to see if they will take my new, state health insurance.
I appreciate any and all recommendations you have for Neurosurgeons in the tri-state region or anyone else nearby if you're certain they will take MO HealthNet. Thanks everyone for taking a moment to read this and providing your suggestions and recommendations.
Wishing you all a "relatively" pain free day.
Cheers!
Toni
www.ASAP.org
Providing Research, Education and Support for Chiari Malformation and Syringomyelia
NS in MO, AR, TN?
Moderator: pmaxwell
9 posts • Page 1 of 1
NS in MO, AR, TN?
by Wifey S » Sun Aug 19, 2012 1:57 am
CM 9mm|Reverse Curvature of C-Spine|Mild Scoliosis dx 1/09
DDD|Stenosis|Spondylosis|Extrusion@C5-C6 dx 3/09
PFD w/Duraplasty & C1 Laminectomy 4/21/09
Re-admitted to hospital 5/22/09 for Chemical Meningitis
Cholecystectomy 6/04/09
DDD|Stenosis|Spondylosis|Extrusion@C5-C6 dx 3/09
PFD w/Duraplasty & C1 Laminectomy 4/21/09
Re-admitted to hospital 5/22/09 for Chemical Meningitis
Cholecystectomy 6/04/09
- Wifey S
- Posts: 157
- Joined: Sun Jan 18, 2009 2:42 pm
- Location: Overland Park, KS (Kansas City metro)
Re: NS in MO, AR, TN?
by razzle » Sun Aug 19, 2012 4:33 am
Dr. Anthony Capocelli in Fort Smith , Arkansas
Once you choose hope, anything's possible.
Roz( Razzle51 or Rosalyn
Iowa
Roz( Razzle51 or Rosalyn
Iowa
-
razzle - Posts: 1876
- Joined: Thu Apr 30, 2009 4:55 am
Re: NS in MO, AR, TN?
by tnglitter » Sun Dec 23, 2012 7:20 am
I can definitely vouch for Dr. Capocelli in Fort Smith AR. He's an angel in a teddy bear body! He shunted my syrinx in Jan 09 and had done over 300 of those procedures at that time. I owe my legs to him and to Roz, who recommended him to me!
Rhonda
Rhonda
T Spine SM T8-T12 (9 mm) Syringopleural Shunt & Laminectomy T10/T11 5 Jan 09
C spine Disc bulges/canal narrowing/DDD
L spine Spondylosis/DDD
Mom of 3 daughters & MiMi to 2 grandsons & 1 granddaughter
C spine Disc bulges/canal narrowing/DDD
L spine Spondylosis/DDD
Mom of 3 daughters & MiMi to 2 grandsons & 1 granddaughter
-
tnglitter - Posts: 572
- Joined: Sat Jul 21, 2007 12:24 pm
- Location: Central Tennessee
Re: NS in MO, AR, TN?
by razzle » Sun Dec 23, 2012 4:06 pm
dr Capocelli is no longer there....
Once you choose hope, anything's possible.
Roz( Razzle51 or Rosalyn
Iowa
Roz( Razzle51 or Rosalyn
Iowa
-
razzle - Posts: 1876
- Joined: Thu Apr 30, 2009 4:55 am
Re: NS in MO, AR, TN?
by tnglitter » Sun Dec 23, 2012 7:07 pm
WHAT? Where did he go, do you know? I know he has extended family in the area. Perhaps he gave it up due to insurance crud.... 
Rhonda
Rhonda
T Spine SM T8-T12 (9 mm) Syringopleural Shunt & Laminectomy T10/T11 5 Jan 09
C spine Disc bulges/canal narrowing/DDD
L spine Spondylosis/DDD
Mom of 3 daughters & MiMi to 2 grandsons & 1 granddaughter
C spine Disc bulges/canal narrowing/DDD
L spine Spondylosis/DDD
Mom of 3 daughters & MiMi to 2 grandsons & 1 granddaughter
-
tnglitter - Posts: 572
- Joined: Sat Jul 21, 2007 12:24 pm
- Location: Central Tennessee
Re: NS in MO, AR, TN?
by razzle » Mon Dec 24, 2012 3:39 am
nobody seems to know where he went .... hey been trying to reach you on FB
Once you choose hope, anything's possible.
Roz( Razzle51 or Rosalyn
Iowa
Roz( Razzle51 or Rosalyn
Iowa
-
razzle - Posts: 1876
- Joined: Thu Apr 30, 2009 4:55 am
Re: NS in MO, AR, TN?
by tnglitter » Mon Dec 24, 2012 8:06 am
I'm sorry - been a tough year again & I tend to just drop out of sight when things get crazy.
T Spine SM T8-T12 (9 mm) Syringopleural Shunt & Laminectomy T10/T11 5 Jan 09
C spine Disc bulges/canal narrowing/DDD
L spine Spondylosis/DDD
Mom of 3 daughters & MiMi to 2 grandsons & 1 granddaughter
C spine Disc bulges/canal narrowing/DDD
L spine Spondylosis/DDD
Mom of 3 daughters & MiMi to 2 grandsons & 1 granddaughter
-
tnglitter - Posts: 572
- Joined: Sat Jul 21, 2007 12:24 pm
- Location: Central Tennessee
Re: NS in MO, AR, TN?
by miles3 » Sun Mar 03, 2013 1:35 pm
If you are still looking, I was just successfully decompressed by Dr. Stephen Griffith in Kansas City. He is affiliated with Saint Luke's on the Plaza. He does both pediatric and adult cases. They are a great team there. Best of luck to you.
- miles3
- Posts: 4
- Joined: Thu May 17, 2007 9:42 pm
Re: NS in MO, AR, TN?
by razzle » Mon Mar 04, 2013 5:50 am
dr capocelli is now in Little Rock, Arkansas....
Once you choose hope, anything's possible.
Roz( Razzle51 or Rosalyn
Iowa
Roz( Razzle51 or Rosalyn
Iowa
-
razzle - Posts: 1876
- Joined: Thu Apr 30, 2009 4:55 am
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