what now

Have a question about a symptom, procedure, medication, diagnosis, research, or coping? Ask questions and share what you know with others

Moderator: pmaxwell

what now

Postby donny » Sat Aug 09, 2014 8:32 pm

Just got all the mri's back from tci. they said they weren't going to see Heidi because they couldnt see anything unusuall on the imiging. She has a neurogenic bladder, She has no or very little feeling on her R side, her headaches are up there very high on the pain scale, her lower back is always hurting. any suggestions would be appreciated. weve seen her normal NS, a couple spine surgeons a couple neurologists and nobody will even give us a hint of what the problem is.
Take care
Don
donny
 
Posts: 317
Joined: Tue Mar 18, 2008 11:53 pm

Re: what now

Postby syrinx48 » Sun Aug 10, 2014 5:09 am

Sent you a private message
syrinx48
 
Posts: 631
Joined: Thu May 17, 2007 6:24 am
Location: Netherlands

Re: what now

Postby donny » Sun Aug 10, 2014 10:22 am

I think I will write and see if they will reconsider their position. Her pcp didn't send results of her urodynamics test or any other stuff from the urologist.
Take care
Don
donny
 
Posts: 317
Joined: Tue Mar 18, 2008 11:53 pm

Re: what now

Postby pmaxwell » Thu Aug 14, 2014 2:17 pm

does she have a tethered cord?
Together We Can...
pmaxwell
 
Posts: 152
Joined: Mon Jan 31, 2011 2:20 pm

Re: what now

Postby razzle » Thu Aug 14, 2014 2:34 pm

I was thinking TC too.
Once you choose hope, anything's possible.

Roz( Razzle51 or Rosalyn
Iowa
User avatar
razzle
 
Posts: 1876
Joined: Thu Apr 30, 2009 4:55 am

Re: what now

Postby donny » Fri Aug 15, 2014 9:08 am

Heidi and myself have been thinking tethered cord for a very long time, she was detethered in 2009 but we believe she retethered.
Anyway, TCI said if we wanted another opinion to see Dr. Bolognese at his new location, they said he would be in his office today (Friday).
We have contacted him Via E-mail. and explained everthing and he said he could probably help.
So we'll go there
Take care
Don
donny
 
Posts: 317
Joined: Tue Mar 18, 2008 11:53 pm

Re: what now

Postby razzle » Sat Aug 16, 2014 9:27 am

keep us posted
Once you choose hope, anything's possible.

Roz( Razzle51 or Rosalyn
Iowa
User avatar
razzle
 
Posts: 1876
Joined: Thu Apr 30, 2009 4:55 am


Return to All About Chiari, Syringomyelia, and Related Disorders

Who is online

Users browsing this forum: No registered users and 12 guests