by Debbieducati » Mon Aug 10, 2015 5:09 pm
I was diag. in 2004 with SM. My symptoms were so involved with so many different parts of my body it was hard for doc's to determine what was going on. Then you get caught up in the heath care system, that does not help. After developing Gastroparesis on top of SM in my cervical spine, I continued to get worse. I lost a good job, or I should say Career. After going off all pain medication because I do not digest food, I lost my insurance. My husband came out of retirement so we could get our medical back. I did not see a doctor for two years. Then I started again. It took 30 neurologists to even see me. I called all on my insurance plan. Only 1 knew about syringomyelia. Then had all my GI testing. So It has taken 2 years with SSDI in California to get a hiring with a judge. I was denied twice before. My hearing was on Tuesday of last week. I have severe fatigue, do not process 80% of my food, and I have trouble walking, and constant tremors and constant muscle contractions. I think the hardest part was sitting their listening to a doctor on the other end of the phone, (Court appointed doctor) say that this syrnix could not be causing all this!!!!!!!!!! Wow did not have any of this before the paralysis!!!!!!!! I will let you know what happens, in California it takes 30 to 90 days to get a result. Please wish me luck.
Love to all
Debbieducati
PTSM C5, C6