Children and syringomyelia

Do you have a child who has been diagnosed with idiopathic syringomyelia? Due to the increased diagnosis of Chiari malformation, many neurosurgeons are becoming more familiar with CM related symptoms but what about a child who does not have Chiari? Those parents face the dilemma of how best to provide the needed care for their child in a world of the unknown. Who do you turn to when your doctor doesn’t seem to understand? How do you find the best treatment options?