Kids For A Cure Club Summer Newsletter
I am excited to introduce myself as a new volunteer with ASAP and that I will be chairing the Kids For A Cure Club. I live in Kansas with my husband, Kevin, and our four children: Christian (16), Julianne (13), Megan (11), and Laci (7). I have been a stay at home wife and mother since I was diagnosed in July 2011 with syringomyelia/ syringohydromyelia. My syrinx was from C4 to T10. I had surgery to place a shunt at C4-C5 in August 2011. I still have a syrinx in my cervical spine that may never go away. I have (mostly) learned to live with SM and hope to help others do the same. I chose to work with the Kids Club because I cannot imagine any child having to grow up with the chronic pain, that SM, CM and related disorders causes, because, even as an adult, it can be quite difficult.
I would like to do things that allow the children to be creative and maybe even choose some of their own activities. Something that I would love to do first is to have each child write a letter to me about themselves. Of course, this is optional but, I would reward each child for their efforts in letting me get to know them. I would love to know each of their stories, what is their illness and how they have learned to cope, what do they want to be when they grow up, hobbies, likes/dislikes, what they do for fun, favorite foods, movies, pets, favorite color, talk about the conference (if they attended) and what they liked best/least, did they meet any new friends, what did they learn…etc…whatever the children feel like sharing about themselves. Just a page or two (more if needed is great too!). I think it would be great if a picture of the child could be included with their letter. I really want to know them so I can do a good job for them. You can send them directly to my email address below or mail them to the office and they will forward them to me. ASAP, PO Box 1586, Longview, TX. 75606-1586.
Some of my other plans include a poetry contest, short story contest, and an ASAP poster contest. I have a few ideas for fundraisers and possible donations.
Since I am new to ASAP, I would like for everyone to know that I am open to suggestions or ideas that may change/ improve my own ideas. This is an amazing cause and it is so important that it be performed as a group effort. Please feel free to contact me with questions, ideas, suggestions, or if you need help with a project.
I am excited and proud to be a volunteer with ASAP and I look forward to working with everyone to improve the daily lives of all those affected while we are in search of a cure.
ASAP Kids Club Chair
Click here to view the KIDS For A Cure Club Newsletter
For more information about the KIDS For A Cure Club click here.