ASAP Men’s Facebook Support Group

 

This forum is an opportunity for men associated with Chiari and syringomyelia to have a private opportunity to discuss various issues and provide support in a positive manner. The forum is open to all men. Patients, Spouses, and Parents. Our goal is to bring important insight and value to help each other. Click here.

One thought on “ASAP Men’s Facebook Support Group

  1. I’ve just been diagnosed with Chiari type I and the neurosurgeon that I saw said that all my symptoms that I’m experiencing are not due to my diagnosis. Numbness in my extremities, facial numbness, dissyness, extreme pressure headaches. Why is Chiari so misunderstood and dismissed as nothing serious? I am in extreme pain. Does anyone have any tips on how to alleviate the horrendous headaches other than pain meds? I have 6mm tonsillar ectopia, is that not time to get surgery? This neurosurgeon said I did not need surgery. Help!

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