Have you ever felt like you were the only person in your area diagnosed with Chiari or syringomyelia? If you have, you are not alone. But the fact is someone living within a few blocks might be thinking the same thing. Syringomyelia and Chiari are being diagnosed more often. Not only in children but also in adults who might have been previously misdiagnosed.
The internet has made it possible for many to find others who share their predicament but how often do you ask a stranger you meet on a social media site, where they live.
Volunteers are stepping up to help raise funds to support ASAP programs and research and at the same time connecting with others in their community. By spreading awareness about the disorders, they are letting the world know we do exist and we are not alone.