Dancin Power

Dancin Power teaches interactive dance classes 100% free of charge to hospitalized children, including patients facing chronic and life-threatening illnesses. By carefully adjusting all movements to better match each patient’s needs, Dancin Power is committed to putting physical activity within … MORE

Scholarships for Students with Disabilities

With more adaptive technologies and progressive legislature, prospective college students with disabilities have countless resources available to make the transition to higher education less stressful. Affordable Colleges Online just updated their College Resources for Students with Disabilities guidebook. You can … MORE

2015 Speakers Confirmed

July 22-25, 2015 Marriott at Eagle Crest Ypsilanti, Michigan Host Cormac Mayer, MD University of Michigan Health System Speakers: Allison Ashley-Koch, PhD, Duke University; Rajiv Bapuraj, MD, University of Michigan; Ulrich Batzdorf, MD, UCLA; Paolo Bolognese, MD, NSPC; Wade Cooper, … MORE

‘Tis the Season

Holidays can be extremely stressful. Shopping, cooking, parties and programs all demand time and energy that those with syringomyelia and Chiari might not have. Enjoy the holidays more by knowing your limits, schedule events to allow breaks and ask for … MORE

Syringomyelia Awareness Month

Syringomyelia Awareness Month The American Syringomyelia & Chiari Alliance Project, Inc. is seeking your help in getting every state’s government office to declare May the official month for Syringomyelia Awareness. What is a Proclamation? A proclamation is an official declaration … MORE

Miracle Flight Expands Program

In addition to their mission of providing free airline transportation for a child who must travel out-of-state for specialized medical care, They are expanding their scope of services by providing travel for children and their parents to attend medical conferences … MORE