In an article posted on Neurology Now it says that an article published in the New England Journal of Medicine in 2007 reported that an estimated 3 million people in the US have Chiari. I would say there must be … MORE
Whether you live in Colorado, Indiana, New York or South Carolina, you can make a difference by spreading awareness and raising funds to support those affected by Chiari and syringomyelia. Click here for more information.
Researchers from the University of Central Florida have created cells that protect nerves in the brain and spinal cord. The cells were developed from umbilical cord blood stem cells and could have applications the treatment of spinal cord injury and … MORE
The Genetic Information Nondiscrimination Act (GINA) is a federal law that protects individuals from genetic discrimination (i.e. being treated unfairly because of differences in their DNA that increase their risk for disease). Enacted in 2008, GINA protects from genetic discrimination … MORE
After twenty years with ASAP I’ve notice that more people seem to be diagnsosed in the winter. People also seem to have more symptoms in the winter. Not sure if it is because of being less active, the cold weather, … MORE
This forum is an opportunity for men associated with Chiari and syringomyelia to have a private opportunity to discuss various issues and provide support in a positive manner. The forum is open to all men. Patients, Spouses, and Parents. Our … MORE
Check out the Upcoming Events for information on Support Group meetings and walks.
We have the conference main agenda available to view and registration is open. This year’s theme is Reclaiming Health. The Omni Resort is a great hotel for a vacation. So make your plans now.
The Parent Educational Advocacy Training Center (PEATC) offers an Individualized Education Program (IEP) Checklist iPhone app. School-aged students with disabilities are provided an Individualized Education Program designed to support their unique educational needs. The IEP Checklist App helps parents of … MORE
Breakthrough pain — often called “flares” by doctors or “flare-ups” by patients — is serious enough to upset the lives of people who are already trying to control chronic pain with one or more drugs. BTP is not new pain. … MORE