Together We Can… Walk & Roll

Whether you live in Colorado, Indiana, New York or South Carolina, you can make a difference by spreading awareness and raising funds to support those affected by Chiari and syringomyelia. Click here for more information.


The Genetic Information Nondiscrimination Act (GINA) is a federal law that protects individuals from genetic discrimination (i.e. being treated unfairly because of differences in their DNA that increase their risk for disease). Enacted in 2008, GINA protects from genetic discrimination … MORE

2011 Conference

We have the conference main agenda available to view and registration is open. This year’s theme is Reclaiming Health. The Omni Resort is a great hotel for a vacation. So make your plans now.

IEP App for iPhone

The Parent Educational Advocacy Training Center (PEATC) offers an Individualized Education Program (IEP) Checklist iPhone app. School-aged students with disabilities are provided an Individualized Education Program designed to support their unique educational needs. The IEP Checklist App helps parents of … MORE

Breakthrough Pain

Breakthrough pain — often called “flares” by doctors or “flare-ups” by patients — is serious enough to upset the lives of people who are already trying to control chronic pain with one or more drugs. BTP is not new pain. … MORE