Conference Speakers The following speakers have agreed to participate in the ASAP annual conference: Richard Anderson (Columbia) Allison Ashley-Koch (Duke) Marat Avshalumov (IOM at NSPC) Ulrich Batzdorf (UCLA) Ghassan Bejjani (UPMC) Paolo Bolognese (Chiari NSC) Andrew Brodbelt (Liverpool, UK) Marco … MORE
CM1/S Study Participation The Duke Molecular Physiology Institute (DMPI), formerly the Duke Center for Human Genetics, is actively recruiting families who have TWO OR MORE family members with Chiari type 1 malformation, with or without syringomyelia. These family members must … MORE
May is Syringomyelia Awareness Month
The ASAP Board of Directors has added new Board members in recent months. Bridget Borys was elected in December 2016 while John Caemmerer was reelected in February 2017. Bridget graduated from SUNY Fredonia in 2007 with her Bachelors in Social … MORE
We have began uploading the 2016 conference videos to our website and YouTube channel. 2016 Conference Videos If your device does not support Flash Player, checkout our YouTube channel by clicking on the icon in the upper right of your … MORE
The Board of Directors approved three new research grants at the October 2016 meeting. The projects have a combined expense of $97,000. The Effect of Demographic and Socioeconomic Factors in the Diagnosis and Treatment of Chiari I Malformation will take … MORE
Every paid order from the ASAP Store during the month of October 2016 gets a free posted note pad.
Special thanks to Ann Humphreys who coordinated the walk that took place on September 23, 2016.
Chiari Awareness fact #23! Without my family and friends I would have never made it this far! Your support means the world to me!
We just received a new order of the awareness bracelets. Get yours today!