Great Expectations - Conference – Main Agenda


CONFERENCE SCHEDULE (subject to change)

Wednesday, July 19

6:00 pm – Registration and buffet
Support group meeting breakouts after reception for diagnosed, friends & family, parents, etc.

Thursday, July 20

Room 1 AM 8:00 – 12:00
PANEL: CHIARI SURGERY (Chair: Ulrich Batzdorf)
• Non-Dural Opening, Current State of the State – Neil Feldstein (Columbia)
• Dural Opening: Real or Perceived Risk? – Mark Souweidane (Cornell)

PANEL: COMPLEX CHIARI
• Indications for Fusion in Pediatric Chiari I Malformation – Richard Anderson (Columbia)
• Craniocervical Fusion in Adult Complex Chiari and Condylar Screws, Adults – Paolo Bolognese (CNSC)

LECTIO MAGISTRALIS – KEYNOTE SPEECH
Primary Spinal Syringomyelia (including post-traumatic, post-inflammatory, arachnoid cysts) – Ulrich Batzdorf (UCLA)

Room 1 PM 1:30 – 5:30
PANEL: UNDERSTANDING SYRINGOMYELIA
• Syringomyelia Not Associated with Chiari I Malformation or Arachnoiditis – John Heiss (NIH)
• Syringomyelia and CMI: Classification and Clinical Diagnosis – Palma Ciaramitaro (Chiari Center of Expertise, Torino, Italy)
• How Should Syringomyelia Be Defined And Diagnosed – Jörg Klekamp (Germany)
• Questions on the Pathogenesis Of Syringomyelia – Andrew Brodbelt( UK)

Room 2 AM 8:00-12:00
PANEL: THE 101 LECTURES
• Principles of Surgical Management of Chiari I Malformation – Ian Heger (Medical College of Georgia)
• Syringomyelia: Basics about Pathophysiology, Diagnosis, and Principles of Surgical Management – Tina Loven (Mercy Clinic Springfield, MO)

PANEL: OMNIBUS
• Epigenetics and Regeneration of the CNS – Bermans Iskandar (University of Wisconsin)
• Clinical Outcome Scales and Prediction Tools for Surgical Outcomes in Chiari Malformation – Nicholas Wetjen (Mayo Clinic)
• “Representing and Intervening – Jorge Lazareff (UCLA)

Room 2 PM 1:30 – 5:30
PANEL: OMNIBUS
• Incidental CMI – Robert Keating (Children’s National Washington)
• Fluid Dynamics Ear & Brain, Cochlear Vestibular System and Tinnitus. A Clinical Protocol for Diagnosis and Treatment in Chiari Patients – Abe Shulman (SUNY Brooklyn)
• Physical Therapy Evaluation and Treatment of the Neck and Upper Extremities for the Person with Ehlers-Danlos Syndrome – Kevin Muldowney (Rhode Island)
• Pain Management and Botox in CMI – Robert Duarte (President of NY State Pain Society)
• Medical Marijuana and Pain – Robert Duarte (President of NY State Pain Society)

Friday, July 21

Room 1 AM 8:00 – 12:00
PANEL: REDEFINING CHIARI
• Toward a Consensus on the Definition of Chiari I Malformation. – Harold Rekate (Chiari Institute)
• Pathogenesis and Clarification of Chiari Malformations: Morphometric Analyses of the Posterior Cranial Fossa And Craniovertebral Junction – Combined with Surgical Management of Chiari Malformations Based on the Pathogenesis and Mechanisms of Tonsillar Decent – Misao Nishikawa (Osaka, Japan)
• Genetic Hypotheses of Chiari Malformations Type I – Aintzane Urbizu Serrano (Duke University)
• Differential Diagnoses of Headache in the Patient with Chiari I Malformation. – Fraser Henderson (Maryland)

LECTIO MAGISTRALIS – KEYNOTE SPEECH
Syringobulbia in Chiari I Abnormalities – Arnold Menezes (University of Iowa)

Room 1 PM 1:30 – 5:30
PANEL: CHIARI SURGERY
• Primum Non Nocere, First Do No Harm-Long-Term Follow-Up of Surgical Treatment of Pediatric Chiari I Malformation – Jeffrey Wisoff (NYU)
• Rapid Fire Panel about Chiari Surgery Select Panel

PANEL: UNDERSTANDING SYRINGOMYELIA
• Shunting to the Subarachnoid Space for Treatment of Syringomyelia – Marcus Stoodley (Sidney, Australia)
• Pathogenesis and surgical treatment of syringomyelia associated adhesive arachnoiditis – IIzumi Koyanagi (Hokkaido, Japan)
• Transverse myelitis in children with Chiari I malformation – Sudhakar Vadivelu (Cincinnati Children)
• Failed foraminal decompression, surgical complications avoidance in syringomyelia – Fabrice Parker (Paris)

Room 2 AM AM 8:00 – 12:00
PANEL: THE 101 LECTURES
• “Basilar invagination”, and craniocervical instability – diagnosis and surgical treatment – Brian Dlouhy (University of Iowa)

PANEL: OMNIBUS
• Further Experience with Trauma to the Head or Spine Causing Conversion to Symptomatic Chiari 1 Malformation or Syringomyelia. – Charles Tator (Toronto, Canada)
• Sleep apnea and CMI (running title) – Juan Sahuquillo (Barcelona, Spain)
• Learning challenges in CMI – David Frim (University of Chicago)
• Long Term Follow Up in Dogs With Chiari-Like Malformation having Foramen Magnum Decompression with Cranioplasty – Dominic Marino (Canine Chiari Institute)

Room 2 PM 1:30 – 5:30
PANEL: OMNIBUS
• Orthostatic Intolerance in the Setting of Chiari malformation – Peter Rowe (Hopkins)
• Peripheral Nerve Stimulation for the Treatment of Refractory Headache in the Chiari Population – Alon Mogilner (NYU)

PANEL: INTRAOPERATIVE NEUROPHYSIOLOGIC MONITORING
• Neurophysiological Monitoring during surgery for Chiari Malformation and Syringomyelia: What for? – Francesco Sala (Verona)
• Intraoperative monitoring of Craniocervical fusion with condylar screws placement -Marat Avshalumov (IOM at NSPC)

Saturday, July 22

Room 1 AM 8:00 – 12:00
LECTIO MAGISTRALIS – KEYNOTE SPEECH
Tethered Cord Syndrome – Scientific Analysis for Diagnosis and Treatment – Shokei Yamada (Loma Linda)

PANEL: TETHERED CORD SYNDROME – BELIEVERS VS SKEPTICS
• Making the Diagnosis: Selection Criteria for Tethered Cord Syndrome – Monica Wehby (Portland, OR)
• TCs Panel – Cormac Maher (University of Michigan)
• The Clinical Triad of Tethered Cord – TC Panel – Petra Klinge (Brown University)

LECTIO MAGISTRALIS – KEYNOTE SPEECH
Confessions of a Neurosurgeon: What 25 Years of Chiari & Syringomyelia Surgery Have Taught Me – Graham Flint (Birmingham, UK)

Room 1 PM 1:30 – 5:30
PANEL: REDEFINING CHIARI
• History of the definition of the Chiari Malformation – Ghassan Bejjani (Pittsburgh)
• Chiari malformation and atlantoaxial instability: is there a cause-effect relationship? – Atul Goel (India)
• Chiari related syndromes – Timothy George (Austin, Texas)
• Cervical Medullary Syndrome – Roger W Kula (CNSC)
• Chiari malformation: does size matter? – Dan Heffez (Chiari Institute of Wisconsin)
• Chiari malformation: Remember brain sagging! – Wouter Schievink (Cedars Sinai)

Room 2 AM 8:00 – 12:00
PANEL: CHIARI SURGERY
• Chiari Type 1 Anomalies in Pediatric Age. A Series Of 434 Cases – Mirko Scagnet (Istituto Meyer, Firenze)
• Rapid Fire Panel about Chiari Surgery – Select Panel

PANEL: OMNIBUS
• TMJ and CCI in Chiari, Hypermobile and EDS Patients, the Cervical Myofacial Pain Syndrome (CMPS) – John Mitakides (The TMJ Treatment Center)
• Posterior Fossa Volume of Chiari Malformation: Is It Really Smaller? – Yong Liu (Beijing, China)

Room 2 PM 1:30 – 5:30

PANEL: OMNIBUS
• The Value of Chiari Research to Patients and Families: the Park-Reeves Study – Chevis Shannon (Vanderbilt)
• Orthostatic Intolerance in the Setting of Chiari Malformation – Peter Rowe (Hopkins)
• Occipital Nerve Stimulation in Patients with CM1: Experience with Pain Before and After the Decompression – Konstantin Slavin (University of Illinois)
• Comparison of Pre and Post-Operative Foramen Magnum Measurements in Minimal Invasive Surgical Treatment of Chiari Malformation – Yongli Lou (Beijing)

Sunday, July 23

Room 1 AM 8:00 – 12:00
PANEL: CHIARI SURGERY
• Pediatric CM1 and Surgery: why, when and how (learning by a review of more than 500 children, 160 operated on) – Laura Valentini (Istituto Besta, Milano)
• Rapid Fire Panel about Chiari Surgery – Select Panel

LECTIO MAGISTRALIS – KEYNOTE SPEECH
Co-morbid Conditions Associated with EDS – Rodney Grahame (UK)

PANEL: EHLERS-DANLOS SYNDROME
• Joint Hypermobility and Related Spectrum Disorders: Terminology and Classification – Marco Castori (Forlanini, Rome)
• New classification of EDS and Diagnostic Criteria for Classical and Vascular – Clair Francomano (Harvey Institute of Human Genetics)
LECTIO MAGISTRALIS – KEYNOTE SPEECH
What are Dysautonomias? – David Goldstein (NIH)
Room 1 PM 1:00 – 3:00

PANEL: ROLES AND GOALS OF INTERNATIONAL CHIARI SUPPORT GROUPS
• Objectives and Communication Skills by the French Advocacy Group APAISER (French with English subtitles) – Mado Glianton (APAISER France)
• The Ann Conroy Trust: Development of a Patient Support Charity in the UK – Graham Flint, (ANN CONROY TRUST UK)
• Topic TBA -Carlo Celada (AISMAC)
• ASAP: From 1988 to the Future – Patrice Schaublin, ASAP President

Room 2 AM 8:00 – 12:00
PANEL: OMNIBUS
• Is it Mast Cell Activation Syndrome? Diagnosis and Management of Mast Cell Disorders – Anne Maitland (Mount Sinai)
• NIH Common Data Elements – Brandon Rocque (University of Alabama)
• Engineering-based Methods for Static and Dynamic Assessment of Chiari Malformation – Bryn Martin (Iowa)
• A Genetic Hypothesis for Chiari 1 Malformation – Sabrina Giglio (Meyer Firenze)
Room 2 PM 1:00 -3:00
PANEL: OMNIBUS
• Should Sports Participation be Restricted?- Cormac Maher (University of Michigan)
• Intracranial Venous Stenting: Past, Present, and Future – Kenneth Liu (UVA)
• Chiari I and Pseudotumor: Neurosurgical perspective – Gerald Grant (Stanford University)
• Non-Surgical Management of Chiari-related or Postoperative Symptoms – Andrew Ringer (Mayfield)

Video-Posters

    Diagnosis and Treatment of CMI at the Mayfield Clinic – Robert Bohinski (Mayfield Clinic)
    “Situación sociosanitaria del Síndrome de Chiari en España y el papel de la F.E.M.A.C.P.A.
    (Social and health situation of Chiari Syndrome in Spain and the role of F.E.M.A.C.P.A.)” FEMACPA (Spain)
    Title TBA- Victor A Shakhnovich (Burdenko Institute, Moscow)
    Four Years Prospective Followup after Surgery and Comparison with the Conservative Approach in Adults – Palma Ciaramitaro (Consorzio Chiari Torino)
    Video-poster about SYRENET – Palma Ciaramitaro (Consorzio Chiari Torino)
    Title TBA – Robert Keating (Children’s National Medical Center)
    PT Exercises in CMI/EDS – Kevin Muldowney (Rhode Island)
    Differences between Adult and Pediatric CMI – Jörg Klekamp (Germany)
    Experiences and Outcomes of Leaving the Dura Open in Patients with Chiari I Malformations – Andrew Brodbelt (UK)
    SSEP and CMI – Juan Sahuquillo (Barcelona, Spain)
    Small Fiber Neuropathy – Roger W Kula (CNSC)
    Adult CM1 and Headache: Outcome after Surgery – Laura Valentini (Istituto Besta, Milano)
    TBA – Yung Liu (Beijing, China)
    TBA – Mark Souweidane (Cornell)
    Mechanisms of Cognition and Cognitive Function in Chiari Disease and the Role of Decompressive Surgery – Petra Klinge (Brown University)
    The Life and Legacy of Bernard Williams – Graham Flint (Birmingham, UK)
    CMI, Pregnancy and Delivery – Roger W Kula (CNSC)