Great Expectations - Together We Can Walk & Roll

Together We Can Walk!

Bring awareness

to your local community about Chiari and syringomyelia by holding an awareness event or a walk-a-thon or join one of these.

Join ASAP in bringing national awareness for Chiari and syringomyelia in 2017 by hosting a Syringo-my-What? Steps Across the States or Together We Can Walk & Roll for a Cure or Kicks & Licks Tied Together for One Cause walk.  Contact Patrice Schaublin 585-747-9651 or Patrice_Schaublin@ASAP.org. for more information.

APRIL

Beef-N-Brew Bowling Night

Date: Saturday, April 22, 2017
Time: 7:00-10:00 PM
Where: Kingpin Lanes, Egg Harbor Township, NU

Join Christine Grabowsky for an evening of good food and awareness for Chiari and syringomyelia. To purchase tickets or for more information visit Htp://ASAP.kintera.org/Beef-n-Brew

MAY
Yogi’s 2nd Community Fun Day and Ziti Luncheon

When: Saturday, May 20, 2017
Time: Starting at 10:00 am
Where: Seneca Falls Elk Lodge, Seneca Falls, NY

Lots of fun activities for the whole family! For more information visit the event website at http://ASAP.kintera.org/Yogi2017

PAST EVENTS

September 2016


Molly’s 2nd Annual ASAP Syringomyelia and Chiari Walk & Roll for a Cure

Date: September 17, 2016
Time: 10:00 am
Location:

    Brentton Woods Recreation Center
    15700 River Rd
    Germantown, Maryland

Click here to register, become a sponsor or make a donation.

ASAP OKC Walk & Roll for a Cure

Date: Saturday, September 24, 2016
Time: 9:00 am
Location: Earlywine Park

Registration will start at Earlywine Park/Small Shelter at 9:00AM and walk will start at 10:30AM.

If you are interested in helping or want to sponsor please contact Ann at oksupportgroup@ASAP.org or go to the event page and register. http://www.kintera.org/faf/home/default.asp?ievent=1161971
August 2016
2nd Annual Maine ASAP Crisin’ for SM & CM

Date: August 27
Time: Registration begins at 8:00 am, Ride begins at 10:00 am
Where: Ride will begin at Dysarts in Hermon, ME
What: Organized ride open to vehicles with 2,3,4 or more wheels.

Two wheels, three wheels, four wheels or more, all are welcome. Raising funds for research, education and awareness. Just click on the event name above to register, make a donation, sponsor the event and more.

AUGUST 2016

Jessica’s 1st Annual ASAP Syringomyelia and Chiari Walk & Roll for a Cure!

When: Saturday, August 13, 2016
Time: 10:00 am – 2:00 pm
Where: Gouverneur Fairgrounds
85 East Barney St
Gouverneur, NY

Register or just learn more about the event at http://asap.kintera.org/faf/home/default.asp?ievent=1160857

May 2016

Yogi’s Community Fun Day and Ziti Luncheon

When: Saturday May 21st, 2016
What time: 11:00 a.m. – 4:00 p.m.
Where: Seneca Falls Elk’s Lodge, 2221 River Rd, Seneca Falls, NY
What: Ziti Luncheon, games and activities, raffle, silent auction
Ziti Luncheon Cost: Adults (13 and over) $10.00, Children (5-12) $8.00. Children under 5 FREE.
Tickets for activities and games $.50 each. Some activities take 2 tickets. – See more at Yogi’s Community Fund Day and Ziti Luncheon event page


Connor’s ASAP Awareness and Fundraising Event

When: Sunday, May 22, 2016
Time: 1:00 – 4:00 PM
Where: Heckscher Playground Central Park

April 2016

1st Annual Kicks and Licks Walk

Date: April 16, 2016
Time: 10:00 am
Locations:

    Bluemont Park
    601 N Manchester St
    Arlington, Virginia

Click here to register, sponsor or make a donation to support this event.

SEPTEMBER 2015


Molly’s ASAP Syringomyelia and Chiari Walk & Roll for a Cure

Date: September 19, 2015
Event Coordinator: Molly Lichtenstein
Time: Registration 10 AM -11 AM
Walk & Roll 11 AM – 2 PM
Locations: Bretton Woods Recreation Center, 15700 River Rd, Germantown MD

click here to see how Molly’s event did

AUGUST 2015

1st Annual Maine ASAP Cruisin’ for CM & SM

Date: August 22
Registration: 8:00 – 10:00 am
Rolling Out: 10:00 am
Place: Dysarts Hermon, Maine
Event Coordinator: Lisa Dunton-Roy 207-570-6428 or Maine_Support@ASAP.org

JUNE 2015

Swing Fore the Cure

Date: June 19, 2015
Time: Registration 12:00 noon
Shotgun Start 1:00 PM
Open Bar 5:30-6:30
Dinner/Awards 6:30
Locations: Edgewood Golf Club, 16497 Kennedy Road, Auburn IL
Edg_c_swing_fore_cure_042915 click on link to download brochure/registration form.

For more information contact Melissa Sanders at melissamarie27@gmail.com

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Margaret’s 2nd Annual ASAP Sy-Ringo-My-What?! Steps Across the States

Date: April 19, 2015
Event Coordinator: Margaret Leisenheimer
Time: Registration/onsite check-in – 9:30 am, Walk starts 11:00 am
Place: Juniper Valley Park
Juniper Blvd between Lutheran Ave, 71st and Dry Harbor
Middle Village NY

For more information visit our event website (click on title above) or contact Margaret at mjleisenheimer@gmail.com
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2nd Annual Yogi’s ASAP Walk and Roll for a Cure

Date: April 25
Event Coordinator: Michael “Yogi” and Bridget Borys
Location: Seneca Lake State Park, Geneva NY
Time: Registration 11:00 AM
Walk 1:00 AM

To register and/or make a donation for the 2nd Annual Yogi’s ASAP Walk and Roll for a Cure, click here
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NOVEMBER 2014

Madisonville TN Walk & Roll

Date: November 1, 2014
Event Coordinator: Kaleena McNabb
Locations: Houston Park, 298 Houston St, Madisonville TN
Time: registration 10:00 am
Walk start 11:00 am

For more information contact Kaleena at KMAC37354@gmail.com or 423-404-2586
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SEPTEMBER 2014

ASAP 5K Walk, Run & Roll

Event coordinator: Angela Holley
Location: Ritter Park, Huntington, WV – Race will begin at main shelter
Time: 8:00 a.m.
Date: September 27, 2014
Fee: $20.00 early registration; $25 for late registration
To enter race click here or copy and paste http://www.tristateracer.com/RaceDirector/race.php?RaceID=1816 into your browser.
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Oklahoma City ASAP Walk & Roll

Date: Saturday, September 20
Time: Registration 8:00 am, Walk starts at 9:30 am
Place: Earlywine Park
3033 SW 119
Oklahoma City, Oklahoma

For more information visit the event website at https://asap.myetap.org/OKC_walk/ or contact event coordinator, Amber Barnes at 405-971-4420 or email OKsupportgroup@ASAP.org
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JUNE 2014

Sunshine’s Charity Run

Date: June 27 – 29
Time: 3 day event starting Friday evening
Place: Rider’s Roost
100 Elk Creek Rd
Ferguson, NC

Riders Roost Campground Concert 0 Friday 9:pp pm; Saturday Bike Ride starts at Crossroads Harley Davidson, kickstands up at 11:00 am; Concert Saturday starting at 4:00 pm at Forest Edge Amphitheater, Wilkesboro, NC with Swamp da Wamp and The Jimmie Van Zant Band. To register, purchase concert tickets, or make a donation go to https://asap.myetap.org/Sunshine-Charity-Run/

MAY 2014

3rd Annual ASAP’s Sugar Land, TX Walk & Roll for a Cure

Date: Saturday, May 3
Time: Registration 10:00 am Walk starts at 11:00 am
Place: Pecan Park
5500 Pecan Orchard
Sugar Land, Texas

For more information visit the event page at https://asap.myetap.org/2014_Sugar_Land/ or contact Cathy Tufts Cathy_Tufts@ASAP.org
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Rains Day 1K Walk Roll for Syringo & Chiari

Date: Saturday, May 17
Place: New River Valley Mal
on Huckleberry Trail
Christiansburg, VA
Time: Registration 10:00 am, walk starts at 11:00 am

Hoops for Hope Contest on the lawn, lots of fun and activities!

For more information, to register for the walk and or make a donation visit our event page at https://asap.myetap.org/Rains-VA-walk/ or click on the walk title above. You can also contact the event host, Rain Deskin at rainforce81@gmail.com
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5th Annual ASAP Walk and Roll for a Cure
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5th Annual ASAP Walk and Roll for a Cure

Date: Saturday, May 24
Time Registration: 10:00 am at Hometown Pizza, 12 W Main St,
Walk starts at 11:00 am at Pennsy Trail
Place: Hometown Pizza and Pennsy Trail, Greenfield, IN

After the walk enjoy ‘all you can eat’ Pizza and drink $5 per person!

For more information, to register for the walk and/or make a donation visit our event page at https://asap.myetap.org/2014_Greenfield_walk/ or click on the walk title above. You can also contact the walk host, Lori Tutrow at Lori_Tutrow@ASAP.org
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1st annual Walk & Roll Lewis Center OH

Date: Saturday, May 31, 2014
Time: Registration 9:00 am – Walk starts 10:00 am
Place: Highbanks Metro Park
9466 US Rt 23 N
Lewis Center OH

For more information, to register for the walk and/or make a donation visit our event page at https://asap.myetap.org/Gina_Chiari_walk/ or click on the walk title above. You can also contact the walk host, Gina Huffman at GinaChiariFundraiser2014@yahoo.com
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ASAP’s Media, PA Together We Can Walk & Roll for a Cure

Date: Saturday, May 31
Time: Registration 8:00 am Walk starts 9:30 am
Place Rose Tree Park
1671 N Providence Rd
Media, PA

For more information click on the walk title above or copy and paste https://asap.myetap.org/PA_syringo_walk/ or contact event coordinator, Cat Becker at cat.becker933@gmail.com
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April 2014
Great Falls, VA Syringo-my-What? Steps Across the States

Date: Saturday, April 5
Time: Registration 8:45 am, Walk starts at 9:30 am
Place: Riverbend Park
8700 Potomac Hills St
Great Falls, Virginia

For more information visit our event site at https://asap.myetap.org/VA_walk/ or contact Beth Brixius at 703-853-5163 or brixius.beth@gmail.com
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1st Annual Walk and Roll for a Cure 5K

Date: Saturday, April 12
Time: Registration 9:00 am Walk starts at 11:00 am
Place: Hurricane High School track
345 West Tiger Blvd
Hurricane, Utah

For more information visit our event website at https://asap.myetap.org/Utah_walk/ or contact event coordinator Heather Leitner at 435-272-2375 or heatherleitner@ymail.com

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Syringo 5K Walk and Roll
Date: Saturday, April 19
Time: Registration 9:30-10:30 am Walk starts at 11:00 am
Place: Bakers Lake
2700 Airport Rd
Peru, IL

For more information visit the event website at https://ASAP.myetap.org/syringo5K/ or contact event host Tabitha Peters at matab3232@yahoo.com
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Kids LoiliPop Walk and Roll

Date: Saturday, April 19
Time: Registration 9:15 am Walk starts at 9:45 am
Place: Bakers Lake
2700 Airport Rd
Peru, IL

For more information visit the event website at https://ASAP.myetap.org/syirnogo5K/ or contact event host Tabitha Peters at matab3232@yahoo.com
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1st Annual Yogi’s Walk and Roll

Date: Saturday, April 26
Time: Registration 11:30 am – 12:30 pm, walk starts 1:00 pm
Place: Seneca Lake state Park Shelter #1
100 Waterloo Geneva Road
Geneva, New York

For more information, to register for the walk and/or make a donation Click Here or copy and paste https://asap.myetap.org/walk-with-yogi/
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Tulsa OK Syringo-my-What? Steps Across the States

Date: Saturday, April 26
Time: Registration 9:00 am Walk starts at 10:00 am
Place: LaFortune Park
5323 S Yale Ave
Tulsa, Oklahoma

For more information visit our event website at https://asap.myetap.org/syringo_my_what_tulsa/ or Contact: Lauri Edwards 928-710-9144, email usmcmom69@gmail.com or Charyl Turner 918-688-2305, email charyl.turner@okstate.edu
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Syringo-my-What? Walk & Roll

Date: Saturday, April 26
Time: Registration 9:30 am – Walk 10:30 am
Place: Lake Texoma State Park @ Rally Pavilion
Kingston, Oklahoma

For more information visit our event website at https://asap.myetap.org/Kingston_syringo_walk/ or contact Lee Ann Clutter 580-624-0469 or email slclutter67@hotmail.com
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Syringo-my-What? Steps Across the States NY

Date: Sunday, April 27
Time: Registration 9:00 am Walk starts 9:30 am
Place: Juniper Valley Park
Juniper Vlvd between Lutheran Ave, 71st and Dry Harbor
Middle Village NY

For more information visit our event website at https://asap.myetap.org/NY_syringo_walk/ or contact event coordinator Margaret Leisenheimer at mjleisenheimer@gmail.com

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September 2013

ASAP Reading/PA Chiari & Syringomyelia 6th Annual Walk
Date: Saturday, September 21
Time: Registration starts at 9:00 AM Walk starts at 10:00 AM
Place: Grings Mill Recreation Park – Wyomissing, PA

For more information, to register for the walk or make a donation click here to visit our event page or contact Renee Tobias at PAsupportgroup@ASAP.org

May 2013

2013 South Jersey Walk & Roll

Date: May 4
Time: Registrations – 9:00 AM Walk starts at 10:00 AM
Place:

        The Stafford Preserve
        101 Campbell Blvd
        Manahawkin NJ

For more information visit the event page or contact Christine Grabowski at 609-661-5223 or
Christine@marchesano.org

Sugar Land Walk & Roill

Date: May 18, 2013
Time: 10:00 AM – Walk starts at 11:00 AM
Place:

          Pecan Park
          5500 Pecan Orchard Blvd
          Sugar Land, Texas

For more information view our Walk website
Contact: Cathy Tufts email: ctufts@utexas.edu

June

ASAP / Sunshine’s Awareness Poker Run & Music Fest

Where:

            Rider’s Roost
            Motorcycle Resort & Campground
            100 Elk Creek Rd
            Ferguson NC

When: June 28 – 30
June 29 – Registration 11:30 AM – kickstands up 1:00 PM
For more information visit www.ridersroost.com visit event on Facebook or contact Sunshine at

April 2013

Greenfield Walk

Visit our walk website click here
Date: April 27, 2013 – Saturday
Time: Registration 9:00 AM at Hometown Pizza Walk starts 10:00 AM
Place:

              PennsyTrail
              Greenfield, IN

For more information contact Lori Tutrow email: Lori_Tutrow@ASAP.org

March 2013

Clyde’s Chiari Awareness Walk & Roll

Date: March 30, 2013
Time: 10:00 AM Registration
Place

                Smith Park
                500 Tytus Ave
                Middletown OH

Visit our fundraising page. click here 2nd Annual Clyde’s Chiari Awareness Walk

For more information contact Karen or Anna Tannreuther at 513- 435-1104 or email Anna clydesmommy@yahoo.com

PAST EVENTS

October 2012

Saraland Walk & Roll

Date October 27
Time: 8:00 AM registration 9:00 AM walk starts
Place:

                  Amelia Park
                  716 Mae St
                  Saraland AL

For more information view our walk website by clicking here or copy and paste into your browser https://asap.myetap.org/Saraland_walk/ or contact event co-host Sharron Lemons-Miles at 251-680-2303, email lemons12@att.net or Amy Rowe at 251-599-2055, Amy.Williams.Callis@gmail.com

June

Milledgeville Together We Can…Walk & Roll

Date: June 2, 2012
Time: 9:00 AM registration 10:00 AM Walk starts
Place:

                  Oconee River Greenway
                  Milledgeville, GA

For more information view our walk website by clicking here or copy and paste into your browser https://asap.myetap.org/Milledgeville/ or contact event host Brandy Smith at 478-414-6814 or email brad04brandy@gmail.com

May

Colorado Springs Family Fun Day

Date: May 5, 2012
Time: 8:00 AM
Place:

                  Shook’s Trail
                  Colorado Springs, CO

For more information view our walk website by clicking here or copy and paste into your browser https://asap.myetap.org/COwalk/

Contact: Chad Allgood at 719-310-8970 or Tamra Allgood at 719-243-0923 or email taallgood@aol.com

Greenfield Walk

Date: May 5, 2012
Time: Registration starts at 9:00 AM
Place:

                  PennsyTrail
                  Greenfield, IN

Please bring your lawn chairs and join us for lunch following the walk, unlimited pizza will be available for $3/person.

For more information view our walk website by clicking here or copy and paste into your browser https://asap.myetap.org/Greenfield_3rd_walk/

Contact: Lori Tutrow at 317-467-1448 or email lttutrow@prodigy.net

Clyde’s Chiari Awareness Walk

Date: May 26, 2012
Time: Registration 10:00 AM, walk starts at noon
Place:

                  Smith Park
                  500 Tytus Ave
                  Middletown, Ohio

Please visit our walk website
For more information contact Karen or Anna Tannreuther at 513-435-1104 or clydesmommy@yahoo.com

Summerville SC Walk & Roll

Date: May 26, 2012
Time: Registration 9:00 am walk 10:00 am
Where: Azalea Park, Summerville SC

To register or make a donation, visit our walk website, click here. Meet at the Cuthbert Community Center, Azalea Hut at 105 W 5th St. Volunteer to help with this event. For more information, contact Laurie Yeh at (703) 955-6433 yeh.laurie@gmail.com or Patrice Schaublin at 585-747-9651 emailPatrice_Schaublin@ASAP.org .

April


Sugar Land Walk & Roill

 


Date: April 28, 2012
Time: 10:00 AM
Place:

                  Pecan Park
                  5500 Pecan Orchard Blvd
                  Sugar Land, Texas

For more information view our Walk website.
Contact: Cathy Tufts or Laurie Swihart , email: info@texaschiarikids.com