RozRoz was diagnosed at the age of 48 with both Chiari and syringomyelia. She had a decompression surgery in 1999. The surgery was successful in providing relief of her debilitating headaches. She still has a syrinx and manages her remaining symptoms with the help of a pain specialist. Roz is a regular participant on the ASAP message board and enjoys answering questions for people when she can. Over the years she has learned how to cope with living with the uncertainties of a chronic disorder. She says, “more worry means more pain. What helps me cope is to focus on something else and try to get outside more.”

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