Support & Resources - Local Support Groups

“ASAP has withdrawn me from a very isolated and depressed state. Knowing that you are not alone brings with it a level of healing and peace of mind I never imagined possible. ASAP has eased my mental suffering translating into making me feel better physically.”
-Karen, Tennessee

All support group leaders are volunteers who either have these disorders or have a family member diagnosed. While it is their desire to offer support, spread awareness and make a difference in the lives of those affected, please keep in mind that they may not always be available to help. You can contact the ASAP office by email info@ASAP.org or call 903-236-7079. ASAP is greatly appreciative for the time and labor our volunteers give. Without them we would not be able to offer the many programs that are available.

United States
Click on a state or country below to display information for local support groups.

Alabama

No Group

If you would like to start a group
contact Kerry Chu
Kerry_Chu@ASAP.org

California

No Group

If you would like to start a group
contact Kerry Chu
Kerry_Chu@ASAP.org

Connecticut

ASAP’s Connecticut Chiari/Syringo Support Group

Jennifer Macciacciaro
Waterbury, CT
lpmucci27@yahoo.com

Illinois

Chicago Chiari/Syringo support Group

Fred Jacobeit
Phone: 708-370-2463
coachjake4@yahoo.com

Iowa

ASAP’s Eastern Iowa Chiari/Syringo Support Group

Joseph Levinson
Cedar Rapids, IA
319-202-2920
benlevine68@gmail.com

Massachusetts

ASAP’s North Central MA Chiari/Syringo Group

new group forming
contact Kevin Mixon
MA_support@ASAP.org

Minnesota

Midwest ASAP Connection

Judy Hunt
763-795-9980
Judy_Hunt@ASAP.org

New Jersey

Delaware Valley ASAP Chiari/Syringo Support Group

Sharon Sweeten
Landing, NJ
Delaware_Valley_Support@ASAP.org
****

South Jersey Chiari/Syringo Support Group

Christine Grabowski
Manahawkin, NJ
609-661-5223
christine@marchesano.org
****

North Jersey Support

Marc Davis
midavis03@gmail.com
no meetings

North Carolina

Patrice Schaublin
585 747-9651
Durham, NC
patrice_schaublin@ASAP.org

Ohio

Ohio Chiari/Syringo Support Group

Leader Needed
contact Kerry Chu to apply
Kerry_Chu@ASAP.org

Rhode Island

Rhode Island Chiari/Syringo Support Group

Michelle Dumsar
New Support Group Forming
RI_support@ASAP.org or 401-473-7457

South Carolina

ASAP’s Charleston Area Chiari/Syringo Support Group

Group meets in Summerville
contact Laurie Yeh
703-955-6453
yeh.laurie@gmail.com

Tennessee

Mid Tennessee Support Group

Rhonda Bodoin
Mount Juliet, Tennessee
Phone 615-426-1697
email Mid_Tenn_Support@ASAP.org

Rhonda Bodoin
Mount Juliet, Tennessee
Phone 615-426-1697

Virginia

ASAP Blacksburg VA Chiari/Syringo Group

Rain Deskin
Blacksburg, VA
540-838-1309
rainforce81@gmail.com

ASAP Northern VA Chiari/Syringo Group

Sarah Chey
Springfield, VA
571-969-2924
sarah.m.chey@gmail.com

ASAP Hampton Roads VA Chiari/Sryingo Group

Wendy Ford
757-962-0333
wendylinkford@cox.net

West Virginia

Huntington WV Support Group

New Group Forming
Angela Holley – call 304-638-3432 or email
WV_support@ASAP.org

Arizona

AZ Syringo & Chiari Support Group

Kathleen Hall
602-504-0883
kathleenhall389@gmail.com
or
Dianna Contreras
602-973-4508
lildi3@q.com

Colorado

Florida

Chiari Families of the South

Debbie Loomis-Earles
Grayton Beach, FL
850-585-3622
graytongirl@gmail.com

Indiana

Indy ASAP Chiari/Syringo Support Group

Lori Tutrow
Greenfield, IN
317-966-8708
lttutrow@prodigy.net

Louisiana

South Louisiana Support Group

Rhea Dugas & Kurt Trahan
Rhea 337-852-5945 or email South_LA_Support@ASAP.org
Kurt 337-446-3001 or email kpt454@yahoo.com

Michigan

ASAP U.P. of Michigan Chiari & Syringo Group

Upper Peninsula of Michigan
new group forming
contact Stephanie Carlson-Ballone
stephcb@rocketmail.com
or call 906-235-4740

Missouri

Sheila Rainey
Boonville MO 65233
660-882-6368
sheila.rainey@yahoo.com

New York

Long Island, NY Support Group

Shananne Hutter
917-923-0608
nyasapsg@yahoo.com

*****

Oklahoma

ASAP’s OK Chiari/Syringo Support Group

Amber Barnes
405-971-4420
OKsupportgroup@ASAP.org

*****

ASAP’s Tulsa, OK Chiari/Syringo Support Group

Charyl Turner and Lauri Edwards
918-688-2305 or 928-710-9144
charylturner@gmail.com
usmcmom69@gmail.com

Pennsylvania

Western Pennsylvania

Alana Ficco
trendzthesalonspa@comcast.net

*****

ASAP Reading/PA Chiari & Syringo Support Group

Group meets the first Saturday each month at Reading Hospital
Group Leader: Renee Tobias
PAsupportgroup@ASAP.org

*****

ASAP’s Butler, PA Chiarians

Michael Salasky
Butler, PA
butlerpachiarians@embarqmail.com

Not holding monthly meeting at this time

*****

ASAP’s Pittsburgh Chiari / Syringo Support Group

Sherry Hess
724-621-6051
bjh_135@hotmail.com

South Dakota

ASAP’s Dakota Chiari/Syringo Support Group
New Group Forming
contact: Halley Lee at shlee@pie.midco.net

Texas

ASAP’s Greater Houston Chiari & Syringo Support Group

Kerry Chu
Cypress, Texas
516-330-7152
Kerry_Chu@ASAP.org
****

ASAP’s Central Houston Chiari/Syringo Support Group

Annie Chapman
Houston, TX
713-540-8823
Annie_Chapman@ASAP.org
****

Dallas Ft Worth Chiari/Syringo Support Group

Simone Key & Michele Collum
Dallas, TX
Simone 214-640-0651 DFWsupport@ASAP.org
Michele mmrobinson68@gmail.com

Washington

Syringomyelia Northwest Support Group

Michele McGraw
Edmonds, WA
(425) 742-0982
michelelm@frontier.com

Wisconsin

ASAP Madison WI Chiari/Syringo Support Group

Heidi Jagoe
Madison, WI
000-000-0000
asapmadisonwi@gmail.com

International
Click on a country below to display information for local support groups.

 

Ireland

Irish ANTS

The Northern Ireland Self Help Group

4 Broughton Park, Belfast BT6 ODB.
(048) 90 800 948

OR

166 Battleford Road, Armagh BT61 8BX.
(048) 37 548 382

Canada

Canadian Syringomyelia Network

Barbara Forrestall
69 Penny Crescent
Markham ONT L3P 5X7, Canada
905-471-8278
csn@passport.ca

Netherlands

SPV

Chairman: Ad Wartenberg
SPV, De Graafschap 69
2904 XV Capelle aan den IJssel, Netherlands
voorzitter@syringo-chiari.info
http://www.syringo-chiari.info/

To register your support group, simply fill out this form:
http://asap.org/index.php/resources/local-support-groups/register-your-support-group