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Judy Hunt, President
October 2007
I've been privileged to serve as president of ASAP for the past three
years. Let's take a moment to reflect on the many accomplishments
attained during this time. ASAP has remained steadfast in working to
fulfill a very special purpose.
We have one mission: to improve the lives of persons affected
by syringomyelia, Chiari malformation and related disorders while we
find the cure.
We have one vision: a world without the devastating effects of
syringomyelia, Chiari malformation and related disorders.
ASAP implements its mission to improve lives by funding programs that
promote education. Examples include: Connections
newsletter, e-mail announcements, disability-related information, an
annual medical conference, informational pamphlets, DVDs, videos,
conference notebooks and a web site that is visited an average of
14,000 times per week.
ASAP provides support by offering a toll-free telephone line, chat
room, message board, listserv and other e-mail mailing lists, support
group information, special group activities for the youth through our
Kids For A Cure Club, resources for parents and opportunities for
peer-to-peer networking.
Each week, we send an average of 75 information packets in response to
requests received from our website outreach program. People facing the
unknowns of syringomyelia and Chiari malformation rely on us to provide
accurate and trustworthy information.
Behind the programs that are implemented to improve lives, ASAP remains
steadfast to its ultimate mission: find the cure.
We carefully seek out and fund quality research proposals that advance
our understanding of the etiology of the disorders and offer innovative
approaches to treatment.
ASAP has committed itself to funding a national, multi-centered outcome
study. The goal of this multi-year project is to evaluate surgical
outcomes for patients with Chiari I malformation with or without
syringomyelia in hopes of establishing treatment protocols.
As we remain focused on our goals, we look to forward to new and
exciting opportunities. The future is brighter than ever thanks to the
dedication of individuals who come together in support of our mission
and vision.
Judy Hunt
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