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Resource Links 

Disclaimer: Some of the information found on resource web sites is the responsibility of the site sponsors, not ASAP. Care should always be given to reviewing information found in an Internet search and the sources of the information considered carefully. Internet research is not a substitute for seeking the advice of known physicians with proven expertise in syringomyelia and Chiari.


Information Search

AMA Physician Select
http://www.ama-assn.org/aps/amahg.htm
Search for information on licensed physicians in the US.

Credential Search Service
http:www.tese.com/css/indexnew.html
Search for Physician Credentials

Journal of Neurophysiology
http://jn.physiology.org
Search by citation, title, author, keywords or date ranges for original articles or abstracts in the American Physiological Society and the Journal of Neurophysiology.

MEDLINEPlus
http://www.nlm.nih.gov/medlineplus
Consumer-friendly search function links to pre-selected MEDLINE articles.

MEDLINEPlus Chiari
http://www.nlm.nih.gov/medlineplus/headandbrainmalformations.html
MEDLINEPLUS search results specific to Chiari

MEDLINEPlus: Syringomyelia
http://www.nlm.nih.gov/medlineplus/syringomyelia.html
MEDLINEPLUS search results specific to syringomelia

Medscape
http://www.medscape.com

Medscape DrugInfo
http://www.medscape.com/druginfo
Search for medications, their uses, adverse effects and interactions

Neurosurgery://On-Call: Patient Resources
http://www.neurosurgery.org/health/patient/index.asp
Browse through patient resource articles at the American Association of Neurological Surgeons web site.

Oxford Journals Online: Brain
http://brain.oupjournals.org
Obtain full-text articles and abstracts in the Oxford Journals Online: Brain.

PubMed
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed
A web-based service of the National Library of Medicine provides access to MEDLINE articles that may not show up in regular MEDLINE search indexes. Access to full-text articles varies by publisher.


Resource Sites

ABLEDATA, Explore the World of Assistive Technology
http://www.abledata.com/Site_2/Default.htm

American Council for Headache Education (ACHE)
http://www.achenet.org

American Fibromyalgia Syndrome (FMS) Association, Inc.
http://www.afsafund.org

Americans with Disabilities Act
http://www.usdoj.gov/crt/ada/adahom1.htm

Center for Independent Living Web Sites
http://www.jik.com/ilcs.html

Chiari & Syringomyelia News
http://www.chiari-syringo-news.com

Independent Living Centers
http://www.ilru.org/jump1.htm

Intracranial Hypertension Research Foundation
http://www.ihrfoundation.org

Legal Services of Northern Virginia: Legal Aid
http://lsnv.org

The Mayday Pain Project
http://www.painandhealth.org

Pain.com: A World of Information on Pain
http://www.pain.com

Patient Advocate Foundation
http://www.patientadvocate.org

Reflex Sympathetic Dystrophy Network
http://www.rsds.org

Restless Legs Syndrome Foundation
http://www.rls.org

Social Security Administration Office of Disability
http://www.ssa.gov/disability

Spine Universe
http://www.SpineUniverse.com

Syringomyelia Facts
http://www.syringo.org

World Arnold Chiari Malformation Association
http://www.pressenter.com/~wacma

 

Online Articles

Addiction, Physical Dependence, Tolerance. Confused? Together, Pain and Addiction Organizations Recommend New DefinitionsPain Connection, Spring 2001
http://painfoundation.org/page.asp?file=page_newsletters.htm

Crippling Spinal Condition More Common Than Doctor Thought
http://www.kcstar.com/item/pages/local.pat,local/3accbd10.610,.html

NINDS Chiari Malformation Information Page
http://www.ninds.nih.gov/health_and_medical/disorders/chiari_doc.htm

Syringomyelia Fact Sheet
http://www.ninds.nih.gov/health_and_medical/pubs/syringomyelia.htm

Times Ledger: LIJ opens Great Neck center for neurological disorder
http://www.zwire.com/site/news.cfm?newsid=9889465&BRD
=1079&PAG=461&dept_id=506429&rfi=8

Bobby Jones was golf's fast study
http://espn.go.com/sportscentury/features/00014123.html


Online Medical Journals

Journal of Neurosurgery
http://www.thejns-net.org

NeurosurgeryFocus
http://thejns.org/toc/foc/current


Resource Agencies/Organizations

Chiari Care Center
http://www.chiaricare.com/

The Chiari Institute
http://www.northshorelij.com/body.cfm?ID=6407

National Institutes of Health
http://www.nih.gov

National Institute of Neurological Disorders and Stroke (NINDS)
http://www.ninds.nih.gov

Neurology at Massachusetts General Hospital
http://neuro-www.mgh.harvard.edu

Northwest Regional Spinal Cord Injury System
http://depts.washington.edu/rehab/sci

Wake Forest University School of Medicine: Arnold Chiari / Syringomyelia
http://www.bgsm.edu/bgsm/surg-sci/ns/chiarisyrinx.html

 

Resource Links Outside the United States

Canadian Syringomyelia Network (CSN)
http://www.csn.ca

German Syringomyelia Homepage
http://www.involva.de/syring

United Kingdom Arnold Chiari and Syringomyelia Association
http://www.domus.plus.com

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