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ASAP Programs and Services

There is so much to be done, and with your support, we will continue to finance research, education and support programs.

Your gifts make it possible for ASAP to provide many services:

  • ASAP Connections, a bi-monthly newsletter, announces medical and support information, as well as ASAP news.

  • Research Grants are awarded to investigators that demonstrate exciting and innovative approaches to treatment and/or contribute to our understanding of the etiology of CM/SM and its related disorders. Grant applications are peer reviewed and must adhere to standards similar to the National Institutes of Health.

  • ASAP Outreach is a program designed to disseminate information via periodic teleconferences and webinars, featuring keynote speakers from various areas of interest to the SM/CM community.  
  • ASAP Store provides awareness and educational materials.
  • Many Support Groups have been formed across the country by individual sufferers and their families. ASAP offers training and assistance. 

  • The ASAP Annual Medical Conference brings together the leading specialists in SM/CM and the people who are affected. The conference provides opportunities for support and networking, the latest in research and treatment information, question & answer sessions moderated by the doctors, and an awards banquet. Held each July, the location is changed each year to provide people with more opportunity to attend.

  • Kids For A Cure Club provides materials, support and activities for kids ages 6 to 19 interested in promoting ASAP awareness and raising funds for a cure.

  • ASAP Medical Alliance promotes collaboration of medical professionals, research scientists and hospitals. The Alliance serves to create improved care and quality of life for those affected by CM, SM and related disorders through education and research.

  • Media Library provides educational lectures by leading SM/Chiari specialists presented at ASAP annual conferences. DVD/Videos are available for purchase.

  • Conference Notebook provides written transcriptions and power point slides of many conference presentations.

  • The ASAP.org Message Board provides a forum in which members discuss issues related to SM/CM.

  • The ASAP.org Chat Room is open 24 hours a day/7 days a week. Live chats are scheduled several times a week. 

  • The ASAP Listserv provides interactive networking via e-mail through a member-to-member exchange of support and information.

  • Bobby Jones Open Grants award up to $1,000 to those in need for durable medical equipment. 

  • Bobby Jones Open College Scholarships are available to ASAP members with syringomyelia and/or Chiari.

  • The Network Directory includes a list of people willing to be contacted by mail, phone, or e-mail. Copies can be requested by e-mailing our office at info@ASAP.org

  • Business Cards
  • Volunteer Peer Supporters are available by phone to talk with members in need of support. Contact the office at info@ASAP.org for more information.

  • Read personal stories from our members.
  • Circle of Friends, a group of volunteers, mails cards of support to members after treatments or in periods of difficulty.

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