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Upcoming Events
May
GA, N FL, AL Support Group Meeting
Saturday, May 3,
2008
1:00 until 4:00
Columbus Public
Library
3000 Macon Rd.
Columbus, Georgia
706-243-2701
Please RSVP Pam
Holmes: pamjh@charter.net
or call 334-498-3137
"Syringo-My-What?" Charity Golf Tournament
May 12, 2008
Indigo Creek in
Murrels Inlet, SC
This years tournament is dedicated to the memory of Dr.
Marcy Speer. To participate or volunteer, please contact Ann or Mike
Priester at mhpriest@yahoo.com
3rd Annual Help Holly Find A Cure Yard Sale/Bake
Sale/Raffle
May 17-18, 2008
Saturday
and Sunday
Melbourne Masonic Lodge
2300 Dairy Rd
Melbourne, Fl
Help 13-year-old Holly find a cure for SM/CM and related disorders. To
volunteer, donate, or for more information, visit www.helpholly.org
or email sarap@cfl.rr.com
Mid West ASAP Connections Support Group
Saturday, May 17,
2008
11:00 a.m. - 2:00 p.m.
Al Baker's Restaurant
3434 Washington Drive
Eagan, MN
Ph. 651-454-9000
RSVPs are requested (not required) to Judy Mohar to give us an idea of
the
numbers. For additional information, please contact Judy at
651-484-2119 or
Jaymor@comcast.net.
We look forward to seeing you soon!
Chiari &
Syringomyelia Family & Friends Support Group
Saturday, May 24,
2008
2:00 - 4:00 p.m.
Chandler Public Library-Council Chambers
Room 22
S. Delaware St.
Chandler, AZ 85225
RSVP to Alana Volding
Email:avolding@aol.com
or call (480) 990-8697
June
ASAP Outreach Presents
SM and CM
101Webinar
Featuring Keynote
Speaker: Dr. John Oro
June 5,
2008
8:30 pm EST
Register
Now!
Miracle Race For Mylee Grace
Canyon Speedway Park
9777 W Carefree Hwy
Peoria, AZ 85345
June 21, 2008
7:00 PM
50% of the proceeds from this event will be donated to ASAP, the other
50% to Miracle Wish for Chiari. For more info visit http://myleegrace2006.blogspot.com/
Southern Ocean Jersey Chiari Support Group Awareness
Event
Thursday, June 26,
2008
3:00 pm
Little Egg Harbor branch of the Ocean County Library System
290 Mathistown Rd
Little Egg Harbor, NJ 08087
ph 609-294-1197
For more information contact Christine at
christine@marchesano.org
or call 609-812-0515
July
2008 Annual Medical Conference
July
23-26, 2008
Sheraton Crystal
City
Arlington, VA
Host: Dr. John Heiss
NIH Researcher
More Info
September
Chiari People of PA Walk-A-Thon
September 21, 2008
9:00 am
Fairgrounds
Square Mall
Redding, PA
For more information on how to help or participate, contact:
Candace Reinert
610-926-9531
Or email: scotlink2@cs.com
Year-Round Fundraisers
Cafe Press merchandise to benefit ASAP
Keesha Turner hosts a year-round web based fundraiser.
100% of profits are donated to ASAP's Research Fund.
Visit:
www.cafepress.com/chiari for more details.
Clip Postage Stamps
ASAP members began collecting canceled postage stamps as
a fundraiser in the early 1990s. A favorite project for many, these
stamps have raised thousands of dollars.
Cut stamp from envelope leaving a 1/4 inch border. They
must be in good condition; damaged stamps are not usable. Although
commemorative stamps bring in more money, everyday flag stamps
are
also of value.
Please send stamps to:
Maynard Guss
9593 NW 26th Place
Sunrise, FL 33322-2738
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