In our continual effort to serve our community, ASAP is helping the Ann Conroy Trust, UK, to gather information.
This survey is for CHIARI PATIENTS only, and the information gathered will be compiled and presented at the international meeting in July in England.
So please, […]
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Last month ASAP Outreach webinar dealt with Chronic Pain and the Holidays with
Dr. Lance LaCerte. If you missed this, just click on the link below.
click here to watch webinar
With hundreds of thousands of rare disorders it is not surprising that so many doctors have never heard of Chiari or syringomyelia. But where does that leave the patients? In many cases, they must become their own advocate, searching the Internet for information. Unfortunately not […]
Here are some words to help when trying to describe your pain to you doctor.
Achy – if a part of your body feels achy, you feel a pain there that is continuous but not very strong
Acute- used for describing pain that is very strong and […]
I occasionally receive emails for the Genetic Alliance about tips that could be helpful. This one seemed worth passing on.
Do you know your family health history? Check out these cool and easy-to-use tools: the Does It Run In the Family? toolkit and the […]
When I came to work for ASAP almost 23 years ago, I never imagined how much this job would affect my life. One thing for sure I never expected I would still be here after all this time. Mostly becasue I thought they would find […]
It happens every year. Attending an ASAP Chiari & Syringomyelia Conference renews the spirit and breathes new hope into what seems like hopeless situations. This year was no exception.
My daughter just celebrated her sweet sixteenth birthday. All she wanted was to attend the conference- her […]
